Book: Be Your Own Doctor
Monday Oct 2
...Being constantly diagnosed as “healthy” caused me to be told, when I was finally diagnosed correctly, that I had maybe five years to live. Misdiagnosis can be a killer.… It is now my personal mission and obligation to help those suffering from any chronic illness that steals your joy, and bring awareness to Endocrine Disorders. From my journey through Cushing’s to Addison’s to recovery—from triathlete to barely being able to dress myself and finally to recovering into a stronger person I never knew I was.
Read more at https://amzn.to/2pWMhOh
Add or update Your Bio
Tuesday Oct 3
The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.
I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?
More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/
Feast of St Francis of Assisi
Basics: The Pituitary Gland: Small But Mighty
Wednesday Oct 4
“The pituitary is commonly referred to as the ‘master’ gland because it does so many important jobs in the body,” says Karen Frankwich, MD, a board-certified endocrinologist at Mission Hospital. “Not only does the pituitary make its own hormones, but it also triggers hormone production in other glands. The pituitary is aided in its job by the hypothalamus. This part of the brain is situated above the pituitary, and sends messages to the gland on when to release or stimulate production of necessary hormones.”
Read more at https://cushings.invisionzone.com/topic/56334-the-pituitary-gland-small-but-mighty/
Basics: Meds - Isturisa
Thursday Oct 5
Cushing’s disease is a progressive pituitary disorder in which there is an excess of cortisol in the body. While the disease can be treated surgically, this option is not possible for all patients. This is one of the approved medications that assist in controlling cortisol levels in people with Cushing’s disease.
Isturisa was approved in 2020 to treat adults with Cushing’s disease for whom pituitary surgery is ineffective or not an option.
Read more at https://cushings.invisionzone.com/topic/56571-meds-isturisa/
More Comments added to MaryO, 35th Pituitary Surgery Anniversary
Thursday Oct 5
More from Facebook, 2022 - Janice said 'I’m so happy that you documented your life. And am grateful you gave up so Much of your life to raise awareness for our disease....If it weren’t for the support that you have provided all of us over the years life would be so Much more difficult. Thanks for everything you’ve done and continue to do'
Marie said 'Congrats
to you on this special anniversary! I feel so honored and blessed to have met you on a few occasions and most grateful for your visit at NIH while I was there for 3 weeks. Thank you so much for your kindness and support! They meant alot to me!'
Judy said 'Thank you, thank you, thank you....'
Aemi said 'Amazing. Thank you for sharing your story and for continuing to educate doctors on Cushings!'
Basics: Workup for Incidental Pituitary Adenoma
Thursday Oct 5
A 35-year-old woman is seen in the outpatient clinic for evaluation of an incidental pituitary macroadenoma. Her medical history is significant for hypertension, diabetes, hyperlipidemia, polycystic ovary syndrome, and obesity. She initially presented to the emergency department (ED) a week ago after an episode of right visual field changes that she described as waviness in her right eye and right hemibody sensory changes without motor deficits. While in the ED, she underwent a full workup for possible stroke, which was negative. Magnetic resonance imaging (MRI) of her brain without contrast revealed a 12-mm pituitary lesion; a repeat MRI with contrast was then ordered (Figure). No serum hormonal panel was available for review from ED records.
Read more at https://cushings.invisionzone.com/topic/56643-workup-for-incidental-pituitary-adenoma/
Partly cloudy skies
Saturday Oct 7
After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.
Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately.
Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op
Cushing's Basics: What is Cortisol?
Saturday Oct 7
Cortisol is a hormone which produced by the adrenal gland (cortex) to control blood sugar. The production of cortisol is triggered by the pituitary hormone ACTH. Cortisol is a glucocorticoid which stimulates an increase in blood glucose. Cortisol will also stimulate the release of amino acids from muscle tissue and fatty acids from adipose tissue. The amino acids are then converted in the liver to glucose (for use by the brain). The fatty acids can be used by skeletal muscles for energy (rather than glucose) thereby freeing up glucose for selective utilization by the brain. Cortisol levels are often measured to evaluate the function of the pituitary or adrenal glands. Some of the cortisol is metabolized by the liver to produce 17 hydroxycorticosteroids, which is then excreted in the urine.
Read more at https://cushings.invisionzone.com/topic/56255-what-is-cortisol/