Add or update Your Bio
Tuesday Oct 19
The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.
I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?
More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/
Covid info from Dr. Theodore Friedman (Dr. F)
Tuesday Oct 19
Statistics are that people who are vaccinated have a 1:1,000,000 chance of dying from COVID, while people who are unvaccinated have a 1:500 chance of dying from COVID. I think most people would take the 1:1,000,000 risk. Dr. Friedman has always been a proponent of the COVID-19 vaccine because he is a scientist and bases his decisions on peer-reviewed literature and not social media posts. As we are getting to the stage where the COVID-19 pandemic could end if vaccination rates increase, he feels that it is even more important for people to get correct information about the COVID-19 vaccine.
Read more at https://cushings.invisionzone.com/topic/55819-covid-info-from-dr-theodore-friedman-dr-f/
Joanna, Undiagnosed Bio
Thursday Oct 21
Joanna is from Colorado. She is testing now. Her symptoms are buffalo hump, thin arms and thinner legs, fatigue, extreme leg aching, skin feels like its sunburned, high triglycerides, high cholesterol, weight gain, hair growth on face, the list goes on and on and on.
Read more at https://cushingsbios.com/2021/05/21/joanna-undiagnosed-bio/
Comment on Michelle (Michelle), Cyclical Cushing’s Bio
Thursday Oct 21
I have a very very similar experience. I’m scheduled to go to the mayo clinic in Minnesota in July. I live in Massachusetts so it’s a major decision but I am desperate. Like you I’m a very active runner, cycler, CrossFit etc. and I just I started progressively gaining weight, so much slowly in the beginning and then more rapidly in a bit in the past year. Oddly in 2019, around the time the weight game started happening, I broke out in hives all over my body and angioedema of my feet lip trunk. They had me in the ICU because they thought it was anaphylaxis. It wasn’t and nothing was ever determined as far as the cause. How was your Cushing’s ever confirmed and what was your source?
Read more at https://cushingsbios.com/2018/11/10/michelle-michelle-cyclical-cushings-bio/comment-page-1/#comment-58356
Growth Hormone Study Opportunity - It pays money!
Friday Oct 22
Here's your chance to make your voice heard on Growth Hormone Issues.
Anyone interested would sign up with Rare Patient Voice using the CushingsHelp referral Link. You would then get an email invite to the actual study.
This is a 30 min online survey and Compensation is $50.
Saturday Oct 23
After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.
Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately.
Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op