Lili is from Florida.  She is testing for Cushing's due to many symptoms. She shares some of her test results.  Lil has had thyroid cancer

Read more at https://cushingsbios.com/2019/05/19/lili-undiagnosed-bio/

The 11th annual Pituitary Day will take place on October 19, 2019  Patients living with pituitary disorders can hear lectures from our pituitary specialists, see movies of pituitary surgeries and hear from other patients about their experience living with pituitary disease and undergoing surgery.

Read more at https://cushieblogger.com/2019/05/19/register-for-johns-hopkins-pituitary-day-october-19-2019/

Jackie (samsmom) & Jordan: Cushing’s in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Jackie has appeared on Discovery Health discussing her fight for a cure for her younger daughter, as well. Later, the gene responsible for Sam’s illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie’s oldest daughter, has recently had her adrenals removed.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/15/interview-with-jackie-samsmon-jordan

I have been struggling with progressive symptoms of extreme fatigue, muscle weakness, increased anxiety and depression, rage, acne, weight gain, and sweating just doing small tasks over the last 3 to 4 years. I also have a very hard time controlling my body temperature.

Read more at https://cushieblogger.com/2019/02/20/can-you-help/

“Our study demonstrates the high sensitivity of [gallium Ga-68 dotatate] in the localization of [ectopic Cushing’s syndrome], for both occult primary tumors and metastatic lesions,” the researchers wrote. “Importantly, the use of [gallium Ga-68 dotatate] impacted clinical management in 64% of patients with [ectopic Cushing’s syndrome] overall.”

The researchers noted that the high cost and limited availability of PET/CT imaging might preclude the widespread use of gallium Ga-68 dotatate for imaging in patients with suspected ectopic Cushing’s syndrome, and that experience with the scans remains limited vs. other imaging studies.

Read more at https://cushieblog.com/2019/05/20/imaging-agent-effectively-detects-localizes-tumors-in-cushings-syndrome/

The signs of the disease are often overlooked. It took 14 years to diagnose Ida with the disease and to start treating it successfully. 

See Ida's Story at https://cushieblogger.com/2019/05/19/video-cushings-syndrome-story-of-a-patient/

Post-traumatic stress disorder (PTSD) following Cushing’s disease is a real issue many of us face. However, we don’t have to let it control our lives — there are ways to cope.

Cushing’s changes us both mentally and physically. We become forgetful. We lose strength. We become someone we don’t recognize in the mirror. We lose hair on our heads and gain it everywhere else. We’re always in pain, and we’re always sick, with no end in sight (or at least it feels that way).

Read more at https://cushieblog.com/2018/10/20/finding-ways-to-deal-with-post-surgery-anxieties/

Adrenal insufficiency is a condition that develops when most of the adrenal gland is not functioning normally. Primary adrenal insufficiency arises due to the damage of the glands or because of using drugs that halt synthesis of cortisol. On the other hand, secondary adrenal insufficiency stems from processes that inhibit the secretion of the adrenocorticotropic hormone (ACTH) by the hypophysis as a result of a hypothalamic or pituitary pathology. The former is sometimes also referred to as tertiary adrenal insufficiency.

Read more at https://cushieblog.com/2016/11/20/adrenal-insufficiency-primary-and-secondary/

http://www.cushings-info.com/index.php?title=Pituitary_Hormones

Dr. Krisht earned the honor — sometimes known as the Nobel Prize for neurosurgery — for his cerebrovascular, pituitary and skull base tumor surgery work.

Read more at https://cushieblogger.com/2019/03/21/dr-ali-krisht-receives-2019-herbert-olivecrona-award/

In her bio, Krista added her helpful doctor, Maria Fleseriu

Read more at https://cushieblogger.com/2018/11/19/helpful-doctors-oregon/

 Lili is from Florida.  She is testing for Cushing's due to many symptoms. She shares some of her test results.  Lil has had thyroid cancer

Read more at https://cushingsbios.com/2019/05/19/lili-undiagnosed-bio/

Unfortunately, problems with the pituitary gland may not always be visible on MRIs or other imaging tests because the pituitary is so small. Endocrinologists who handle hormone therapy frequently are not familiar with brain injuries, and may not make the connection that your brain injury was the cause of the problem.

Read more at http://cushieblog.com/2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury

Mutations in USP48 and BRAF genes contribute to the overproduction of adrenocorticotropin (ACTH) hormone by the pituitary gland and consequent development of Cushing’s disease, a study shows, linking these genes to the disease for a first time.

The study, “Identification of recurrent USP48 and BRAF mutations in Cushing’s disease,” published in the journal Nature Communications, also identified a possible treatment for patients with BRAF-related mutations.

...

It is still not clear why some people develop these tumors, but studies have pointed to mutations in the USP8 gene as a possible cause. They are present in 35%–62% of all tumor cases, and influence treatment response and long-term outcomes.

Read more at https://cushieblog.com/2018/11/21/mutations-in-two-genes-usp48-and-braf-linked-to-cushings-disease/

Image-guided (navigation-assisted) endoscopic trans-nasal trans-sphenoidal pituitary surgery is what we are about to view being performed in the country (Sri Lanka) only since October this year. For, the 38-year-old patient lying inert on the operating table has a tumour just above her pituitary gland, between the optic nerves and the carotid arteries, making it a difficult operation-site to access. (The pea-size pituitary gland is dubbed the ‘master gland’ as it produces many hormones for the whole body, while also stimulating other glands to produce other hormones.)

Read more at https://cushieblog.com/2016/12/21/into-the-brain-through-the-nostrils-sri-lanka/

Clinicians should be aware that even extremely low doses of topical ocular steroid therapy can cause iatrogenic Cushing's Syndrome.

Read more at https://cushieblog.com/2017/01/21/topical-ocular-glucocorticoid-leads-to-cushings-syndrome-in-9-year-old/

A clear understanding of the pitfalls in the performance and interpretation of adrenal CT can help prevent incorrect and inappropriate investigations, award-winning researchers from a top London facility have found. It's essential to keep aware of the full range of pseudolesions and mimics, they said.

'Evaluation of adrenal tumor function is limited on imaging, but may be inferred from imaging findings,' noted Dr. Gurinder Nandra and colleagues from the department of radiology at St. George's University Hospitals NHS Foundation Trust in an e-poster presentation that received a cum laude award at RSNA 2018 in Chicago.

Read more at https://cushieblog.com/2019/01/21/how-to-avoid-pitfalls-in-interpretation-of-adrenal-imaging/

In the past decade, several studies in adults and children have described the risk of pituitary dysfunction after traumatic brain injury (TBI). As a result, an international consensus statement recommended follow-up on the survivors.

More info at https://cushieblog.com/2016/11/21/pituitary-dysfunction-after-traumatic-brain-injury-are-there-definitive-data-in-children/

What do you think?  Are your allergies worse or are you having new ones after being post-op Cushing's?

Read more at https://cushieblogger.com/2018/10/21/what-do-you-think-2/

The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.

I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?

More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/

This could be me! I need to talk to the person who wrote this. We have so much in common! We need to chat,

Read the original bio at https://cushingsbios.com/2015/06/16/diana-m-dbear12003-adrenal-bio/

 Lili is from Florida.  She is testing for Cushing's due to many symptoms. She shares some of her test results.  Lil has had thyroid cancer

Read more at https://cushingsbios.com/2019/05/19/lili-undiagnosed-bio/

Nikki is from New Zealand.  She is one of the very few New Zealanders with Cushing's syndrome, a very rare disease caused by excess production of cortisol. Long afflicted by skin disease psoriasis, she had been prescribed the steroidal cream Dermol.

Read more at https://cushingsbios.com/2019/06/22/nikki-c-steroid-induced-bio/

...Mary saved my life with her site and I had so many good times with her in real life. I did a search to see if old Penelopee was still here and she is :) perhaps some new people can enjoy the craziness of Cushies at Sea :)

Read more at https://cushieblogger.com/testimonial/sally-c/

Patients with subclinical hypercortisolism, i.e., without symptoms of cortisol overproduction, and adrenal incidentalomas recover their hypothalamic-pituitary-adrenal (HPA) axis function after surgery faster than those with Cushing’s syndrome (CS), according to a study.

Read more at https://cushieblog.com/2018/10/23/most-subclinical-cushings-patients-dont-require-glucocorticoids-after-adrenalectomy/

... I have every single symptom of Cushing’s, and I believe it is cyclical and has been happening for about 26 years. It will be what kills me, I fear. Of course, it will be deemed because of obesity and health issues related to it. It is frustrating that doctors just think-it’s so rare, this cannot be what’s wrong. I think it is rarely diagnosed because it us hard to get the tests to give the accurate information. I do not think they will ever diagnose me...

Read more at http://wp.me/p3tb2N-r0

Steve Owens (sowens) returned on May 29, 7:30. His topic was building up support networks and using available agencies to get back to work (rehab, PT/OT, job coaches, etc)...

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/29/steve-owens-sowens-returns-to-talk-about-support-networks-and-agencies

Michael is from the UK.  He was diagnosed in May 2015 and had a failed transsphenoidal surgery in September 2015.  As of June 2019 he is waiting for gamma knife to work.

Read more at https://cushingsbios.com/2019/06/22/michael-b-pituitary-bio/

Yes absolutely. Post surgery 7 years and I have low tolerance for food and real allergies to things and food.

From https://cushieblogger.com/2018/10/21/what-do-you-think-2/

Cushings-Help has provided information and support for people with Cushing's or other endocrine problems, their friends and families for over 15 years.

The Cushings Help family of websites and the message boards are growing fast. Each has outgrown it's web server and had to be moved to accommodate this growth.

Read more at http://fnd.us/apR55?ref=sh_73Ppz4

Pat shared her story in an interview. She ad a Pituitary Tumor (Cushing’s Disease) removed  (Macro 1.4 size) by Dr. Kelly at UCLA.

Read more at https://cushingsbios.com/2019/06/23/archived-interview-with-pat-pituitary-patient/

Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you'll want to know.

Find them at http://www.cushings-help.com/definitions.htm

 Lili is from Florida.  She is testing for Cushing's due to many symptoms. She shares some of her test results.  Lil has had thyroid cancer

Read more at https://cushingsbios.com/2019/05/19/lili-undiagnosed-bio/

Louise from Washington   She has ACTH independent bilateral adrenal hyperplasia.

Read her bio at https://cushingsbios.com/2018/11/23/louise-adrenal-bio/

Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol....

Read more at https://cushieblogger.com/2019/04/23/cushings-myths-and-facts-each-person-requires-the-same-dose-of-steroid-in-order-to-survive/

Patients with adrenal insufficiency may accrue substantial health care costs and have more hospital stays and outpatient visits compared with healthy controls, according to findings published in the Journal of the Endocrine Society.

Read more at https://cushieblog.com/2017/04/23/health-care-expenditure-burden-high-in-adrenal-insufficiency/

...I don’t eat much but have fat deposits in the areas associated with Cushing’s. My skin tears easily, I bruise easily, I have digestive disturbances, my face is rounder, my hair is way thinner, I have aches and pain which is mail a very stiff and aching neck. I have other offers places of pain that seem to change locations. I have double vision that gets better and then worse....

In the comments area of https://cushieblog.com/2013/02/20/early-detection-treatment-needed-to-reduce-risk-of-death-cardiovascular-disease-in-cushings-disease-patients/

Heather, pituitary surgery on January 18, 2006 after years of medical problems, June 5, 7:30PM 

Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/05/interview-with-heather-s-pituitary-cushings-survivor

The pituitary gland stimulates all the other endocrine glands to produce their own hormones.

Read more at https://cushieblog.com/2016/09/07/all-about-the-pituitary-gland/

Nursing notes and video on Addison's Disease and Cushing's Syndrome/Disease

Read more at https://cushieblog.com/2016/05/02/addisons-disease-vs-cushings-syndrome-nursing/

 Lili is from Florida.  She is testing for Cushing's due to many symptoms. She shares some of her test results.  Lil has had thyroid cancer

Read more at https://cushingsbios.com/2019/05/19/lili-undiagnosed-bio/

Cushing's patients also have pronounced memory problems, especially for facts like where a car was parked. 'The hippocampus is essential for transferring such facts from short-term to long-term memory,' said Dr. Sapolsky.

Read more at https://cushieblog.com/2016/10/24/severe-trauma-may-damage-the-brain-as-well-as-the-psyche/

Fact:  However, in the case of the chronically ill, a different cycle occurs. In the chronically ill, the person loses his normal health. He goes through a period of treatment and sometimes recovers...

Read more at https://cushieblogger.com/2019/04/24/cushings-myths-and-facts-you-should-be-all-better-by-now/

The Endocrine Society today (10/13/16) issued a Clinical Practice Guideline that recommends treating insufficient hormone levels in individuals with hypopituitarism by replacing hormones at levels as close to the body's natural patterns as possible.

Read more at https://cushieblog.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/

Cushing’s disease patients whose pituitary tumors carry a USP8 mutation are more likely to achieve remission after surgery than those without such mutations, a retrospective Italian study found.

Read more at https://cushieblog.com/2018/10/24/cushings-disease-patients-with-usp8-mutations-more-likely-to-achieve-remission-after-surgery/

James Findling, MD, is a veteran of the endocrinology field, a clinical practitioner and a Cushing’s syndrome expert. For his efforts in these areas, particularly clinical practice, the Endocrine Society is honoring him with its Outstanding Clinical Practitioner Award at ENDO 2019 in New Orleans.

Read more at https://cushieblogger.com/2019/03/24/cushings-syndrome-expert-a-standout-in-clinical-practice/

Cushing’s syndrome is characterized by metabolic disturbances including insulin resistance. Mitochondrial dysfunction is one pathogenic factor in the development of insulin resistance in patients with obesity. We explored whether mitochondrial dysfunction correlates with insulin resistance and other metabolic complications.

Read more at https://cushieblog.com/2019/08/24/the-relationship-of-mitochondrial-dysfunction-and-the-development-of-insulin-resistance-in-cushings-syndrome/

... I have a right side adrenal adenoma and have experienced a number of the things that you wrote about over the years. Have you had an adrenalectomy?... 

Read more at https://cushingsbios.com/2015/07/24/jason-adrenal-bio/

Jennifer P  is from Dallas, TX. She is mom to a beautiful 13 year old girl who has struggled with her weight for years.  After slowed growth doctor diagnosed her as growth hormone deficient and she has done injections for almost a year.

Read more at https://cushingsbios.com/2019/08/24/jennifer-ps-daughter-undiagnosed-bio/

Diagnosis is based on a review of the patient's medical history, physical examination and laboratory tests. Often x-ray exams of the adrenal or pituitary glands are useful for locating tumors. These tests help to determine if excess levels of cortisol are present and why.

No single lab test is perfect, and usually, several are needed. The three most common tests used to diagnose Cushing's syndrome are the 24-hour urinary free cortisol test, the measurement of midnight plasma cortisol or late-night salivary cortisol, and the low-dose dexamethasone suppression test (LDDST). Another test, the dexamethasone-corticotropin-releasing hormone (dexamethasone-CRH) test, may be needed to distinguish Cushing's syndrome from other causes of excess cortisol.

Read more at http://www.cushings-info.com/index.php?title=Diagnostic_Testing

The signs and symptoms of Cushing's syndrome vary from person to person making Cushing's a really hard disease to diagnose.

Read more at http://www.cushings-info.com/index.php?title=Symptoms

In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.

Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency

Cushing’s disease is the most common form of endogenous Cushing’s syndrome. It is caused by a tumor in the pituitary gland that secretes excessive amounts of a hormone called Adrenocorticotropic hormone, or ACTH. Fortunately, this type of tumor is typically benign. Unlike a cancerous (malignant) tumor, a benign tumor stays in its original location and will not spread. After you are diagnosed with Cushing’s syndrome, it is important that your doctor continues the diagnostic process to determine the cause of hypercortisolism.

Read more at http://www.cushings-info.com/index.php?title=Cushing%27s_Disease_or_Syndrome%3F

In patients with Cushing’s disease, removing the pituitary tumor via an endoscopic transsphenoidal surgery (TSS) leads to better remission rates than microscopic TSS, according to new research.

But regardless of surgical approach, plasma cortisol levels one day after surgery are predictive of remission.

Read more at https://cushieblog.com/2019/09/25/cortisol-levels-predict-remission-in-cushings-patients-undergoing-transsphenoidal-surgery/

Cerce is from Rohnert Park, CA.  It has been 26 years since her first symptom of excruciating unrelenting back, and neck,  jaw, and temple pain.  She has been diagnosed with  Hashimoto's and is testing for Cushing's now.

Read more at https://cushingsbios.com/2018/10/26/cerce-h-undiagnosed-bio/

 Lili is from Florida.  She is testing for Cushing's due to many symptoms. She shares some of her test results.  Lil has had thyroid cancer

Read more at https://cushingsbios.com/2019/05/19/lili-undiagnosed-bio/

I would like to know if anybody has tried CBD oils to lower their cortisol levels? I have asked my Dr but he isn’t knowledgeable about whether CBD oils are useful for lowering cortisol levels. If anybody has tried them or has any information on there use in this field I would be interested in find...

https://cushieblogger.com/2019/04/26/can-you-help-newbie-question-about-cbd-oil/

In patients with a diagnosis of Cushing disease in whom magnetic resonance imaging (MRI) shows either no abnormalities or nonspecific abnormalities, surgery is preferable to medical treatment...There is a consensus that the first line of treatment for Cushing disease is transsphenoidal surgery to remove the pituitary adenoma causing the disease, with an 80% remission rate following the intervention. However, in the absence of clear evidence of a pituitary adenoma on imaging, there is some controversy regarding the best treatment.

Read more at https://cushieblog.com/2019/05/25/transsphenoidal-surgery-recommended-for-cushing-disease-with-inconclusive-or-normal-mri/

Charlie is not yet diagnosed with Cushing’s but has many symptoms. He writes, in part, “I understand that Cushing’s Disease is a very difficult disease to diagnose. However, it seems as though we have had to guide doctors through this process over the past year. If I sound bitter and frustrated, it is because I am! I have not been able to work over the past year. Tasks that used to take me several hours to complete now take two days. I can no longer walk the dog. I do not sleep well at night..”

Listen at https://cushieblogger.com/2019/04/28/archived-interview-charlie-creativeogre/

This video depicts an endoscopic transsphenoidal pituitary approach for a patient with a non-functioning macroadenoma. 

See the video at https://cushieblogger.com/2019/03/25/endoscopic-transsphenoidal-approach-for-pituitary-tumor-resection/

Dr. Dori Middleman is a Psychophamacologist, Certified Gestalt Psychotherapist and Cushing’s Patient.

She has had both pituitary surgery and two gamma knife radiosurgeries.

Listen at  https://cushieblogger.com/2019/04/25/archived-interview-dr-dori-middleman-pituitary-cushings-survivor/

Donna Sellers, President, John’s Foundation for Cushing’s Awareness, mother of a Cushing’s patient.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/19/interview-with-donna-sellers-mother-of-a-cushings-patient

Patients with Cushing’s disease may develop post-traumatic stress symptoms, which are generally resolved once they undergo surgery to remove the tumor, but can persist in some cases, a study shows.

The study, “Posttraumatic stress symptoms (PTSS) in patients with Cushing’s disease before and after surgery: A prospective study,” was published in the Journal of Clinical Neuroscience.

Read more at https://cushieblog.com/2019/06/29/post-traumatic-stress-symptoms-common-in-cushings-patients-before-surgery/

http://www.cushings-info.com/index.php?title=Pituitary_Hormones

After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.

Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately.

Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op

 Lili is from Florida.  She is testing for Cushing's due to many symptoms. She shares some of her test results.  Lil has had thyroid cancer

Read more at https://cushingsbios.com/2019/05/19/lili-undiagnosed-bio/

Patricia  is from Austria. Her 15-year-old daughter is in a lot of pain and has had many symptoms of Cushing's since January 2018.

Read more at https://cushingsbios.com/2019/08/26/patricias-daughter-undiagnosed-bio/

Because tumors within the skull cannot be palpated, researchers used Magnetic Resonance Elastography (MRE) to assess pituitary tumor stiffness by measuring waves transmitted through the skull into pituitary macroadenomas (PMAs). MRE reliably identified tumors that were soft enough for removal with a minimally-invasive suction technique versus harder tumors requiring more invasive surgery.

Read more at https://cushieblog.com/2017/01/28/imaging-technique-measures-tumor-stiffness-to-aid-surgical-planning/

Kate (Fairley), July 17, 2008. Kate had symptoms since 1991. She had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituitarism and a CSF leak. She has appeared on National Geographic TV in the Science of Obesity.

Listen at https://cushieblogger.com/2019/04/29/archived-interview-kate-fairley/

Sadly, Kate was only 46 when she died on June 23, 2014.  Her bio and video can be found here: https://cushingsbios.com/2015/06/23/1623/

Do you know how many people have told me that if I just “juice”, I will be cured from Cushing’s or Adrenal Insufficiency?! I appreciate the sentiment, but the sad reality is that no amount of juicing and no vitamin will cure Cushing’s. Some Cushing’s patients do take vitamins, some do eat raw food or paleo diets, and some even juice. However, this is just a lifestyle choice and not an attempt to cure Cushing’s. 

Read more at https://cushieblogger.com/2019/04/26/cushings-myths-and-facts-vitamins-and-natural-remedies-can-cure-heal-cushings/

The use of an insulin pump to deliver continuous pulsatile cortisol may be a viable treatment option in patients with severe adrenal insufficiency who are unresponsive to oral corticosteroids

Read more at https://cushieblog.com/2019/04/26/cortisol-pumps-may-be-viable-option-to-reduce-adrenal-crisis-in-severe-adrenal-insufficiency/

Removal of pituitary adenomas by inserting surgical instruments through the nose (transsphenoidal resection) remains the best treatment option for pediatric patients, despite its inherent technical difficulties, a new study shows.

Read more at https://cushieblog.com/2019/06/22/surgical-removal-of-pituitary-adenomas-through-the-nose-remains-an-effective-treatment-for-pediatric-patients/

Mak is from California  She has been having a really rough couple years with a multitude of symptoms.  A  6mm microadenoma was found on her pituitary gland.

Read her bio at https://cushingsbios.com/2018/11/26/mak-m-pituitary-bio/

Corcept Therapeutics is recruiting participants for its Phase 3 clinical trial evaluating relacorilant as a potential treatment for Cushing’s syndrome-related side effects such as high blood pressure and impaired glucose tolerance....Researchers plan to enroll 130 people in these U.S. cities: Indianapolis, Indiana; Metairie, Louisiana; Jackson, Mississippi; Albany, New York; Jamaica, New York; Wilmington, North Carolina; Miami, Florida; Summerville, South Carolina; El Paso, Texas; Oklahoma City, Oklahoma, and; Aurora, Colorado. More detailed information is available here.

Learn more here: https://cushieblogger.com/2019/04/26/clinical-trial-endogenous-cushings-syndrome-patients-sought-for-phase-3-trial-testing-relacorilant/

The Guest Forum has returned.  At the moment, new guest questions are not moderated.

Check it out at http://cushings.invisionzone.com/index.php?/forum/316-guest-forum/

Scientists have discovered a potential biological reason why women are more likely to develop adrenal disorders, including cancer. According to the researchers, the answer could lie in the increased turnover of hormone-producing cells found in the adrenal glands of females.

Read more at https://cushieblog.com/2019/05/25/scientists-discover-biological-reason-why-women-are-more-likely-to-develop-adrenal-disorders/

Happy B-day MaryO & the message boards! Mary, I'm convinced you won't know till you get to heaven, how many lives you've help save & how much comfort you've brought to some of the sickest people on earth. Can't thank you enough!

Read more at https://cushieblogger.com/testimonial/gina-g-2/

The child’s excess fat was mainly in his abdomen plus he had a round, red, puffy face, which are both common features of Cushing’s disease. He had no history of acute or chronic steroid intake, mood swings, sleep disorders, or issues with eyesight.

Given his clinical presentation, the investigators suspected the boy had Cushing’s disease or pseudo-Cushing’s disease, which refers to situations where the overproduction of cortisol is caused by something unrelated to the disease, such as stress or uncontrolled diabetes mellitus.

Read more at https://cushieblog.com/2018/10/26/rare-case-of-cushings-disease-diagnosed-in-7-year-old-boy/

In spite of the kindness of a therapist and a courageous divorce in which she attains freedom from abuse for herself and her daughters, Barbara cannot shake a profound depression that leads to three suicide attempts. Deeply religious and spiritual, Barbara prays for enlightenment, or at the very least, a release from mental torment. But when she is committed to a mental hospital, she experiences a jolting loss of personal freedom and brutal treatment. It seems that she has gone from a life of torment to a life of torment in a new kind of hell. But through the attentive and kind professionalism of a nurse named Nancy, who notices markings on her body that seem to indicate Barbara has an undiagnosed medical condition, just recently discussed in medical journals, Barbara is released on medical advice to an NIH hospital in Bethesda, Md. It is at that point that her story mercifully changes for the better in her climb to effective treatments for Cushing's disease, pituitary cancer and a chance to recover her life.

Read more at https://amzn.to/2GCDit6

Melissa is from Asheville, NC. She was diagnosed with Cushing's Syndrome about 4 yrs ago at 40 yrs old.
She was told it was due to the steriods my Neurologist prescribed for Trigeminal Neuralgia and other severe facial pain.

Read more at https://cushingsbios.com/2019/06/22/melissa-pituitary-bio-3/

Meghan is from Arlington, Texas.  At age 21 (2015) she was diagnosed with Cushing's Disease. After a failed pituitary surgery, she had a BLA.

Read her bio at https://cushingsbios.com/2019/06/29/meghan-t-pituitary-bio/

EvE7070 is from Tucson, Az.USA  She was finally diagnosed with Cushing's in 2015.  She had pituitary surgery and was in remission.  At the beginning of 2019 her endo said that Cushing's has returned.

Read more at https://cushingsbios.com/2019/08/24/eve7070-pituitary-bio/

My mother had adrenal carsinoma-cushing syndrome in the 60’s.i would sure like to know what was documented.i believe she went to UCLA medical center using some experimental/new drugs for this.i was young I remember lots of trips their..granted she passed when I was a young teenager.didnt get muchof a chance to know her.she was sick 95% of the time

Read more at https://cushingsbios.com/2018/04/01/in-memory-shianne-lombard-treman-march-28-2018/comment-page-1/#comment-50421

In the media: Jessica and Justin, siblings who both had pituitary tumors. 

Read more at https://cushingsbios.com/2018/12/29/jessica-and-justin-siblings-in-the-media/

Michele  is from Buffalo, NY  She had herright adrenal gland and a pheochromocytoma removed. The Pathologist and endocrinologist diagnosed her with Cushings Disease.

Read more at https://cushingsbios.com/2019/01/26/michele-m-michele-adrenal-bio/

Toni Murphy
Harlem Road
West Seneca ,NY 14224

More info at https://cushieblogger.com/2019/01/05/helphttps://cushieblogger.com/2019/01/26/helpful-doctors-new-york/ful-doctors-new-jersey/

Tumors located outside the pituitary gland that produce the adrenocorticotropic hormone (ACTH) may cause, on rare occasions, cyclic Cushing’s syndrome — when cortisol levels show substantial fluctuations over time.

That finding, based on the case of a patient with ACTH-secreting lung cancer,  is found in the study, “Cyclic Cushing’s syndrome caused by neuroendocrine tumor: a case report,” which was published in Endocrine Journal.

Read more at https://cushieblog.com/2019/01/26/patient-develops-cyclic-cushings-syndrome-due-to-lung-neuroendocrine-tumor/

Barbara S is from Columbus, Ohio. She was finally diagnosed in February 2019 and  had surgery mid March to take left adrenal. She is still on 3mg prednisone daily and still has symptoms.

Read more at https://cushingsbios.com/2019/08/26/barbara-s-babs1953-adrenal-bio/