 Partly cloudy skies
69°/60° Personal Stories - MaryO
Sunday May 24
Life changed for me in 1983. At first I noticed I'd stopped having my periods and, of course, I thought I was pregnant. I went to my Gynecologist who had no explanation. Lots of women lose their periods for a variety of reasons so no one thought that this was really significant. Then I got really tired, overly tired. I would take my son to a half hour Choir rehearsal and could not stay awake for the whole time. I would lie down in the back of the van, set an alarm and sleep for the 30 minutes.
Read more at http://www.cushings-info.com/index.php?title=Personal_Stories_-_MaryO Medical Therapies in Cushing’s Syndrome
Sunday May 24
Medical therapy has an important, albeit secondary, role in patients with Cushing’s syndrome. While medications are not currently used as definitive therapy of this condition, they can be very effective in controlling hypercortisolism in patients who fail surgery, those who are not surgical candidates, or those whose tumor location is unknown. Medical therapies can be particularly helpful to control hypercortisolism in patients with Cushing’s disease who underwent radiation therapy and are awaiting its salutary effects. Read more at https://cushieblog.com/2016/12/04/medical-therapies-in-cushings-syndrome/  Overcast skies
78°/59°  Cloudy skies
82°/61° Add or update Your Bio
Tuesday May 26
The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.
I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?
More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/ Coronavirus (COVID-19) and People with Adrenal Insufficiency and Cushing’s Syndrome
Tuesday May 26
Studies have reported that individuals with adrenal insufficiency have an increased rate of respiratory infection-related deaths, possibly due to impaired immune function. As such, people with adrenal insufficiency should observe the following recommendations: - Maintain social distancing to reduce the risk of contracting COVID-19
- Continue taking medications as prescribed
- Ensure appropriate supplies for oral and injectable steroids at home, ideally a 90-day preparation
- In the case of hydrocortisone shortages, ask your pharmacist and physician about replacement with different strengths of hydrocortisone tablets that might be available. Hydrocortisone (or brand name Cortef) tablets have 5 mg, 10 mg or 20 mg strength
- In cases of acute illness, increase the hydrocortisone dose per instructions and call the physician’s office for more details
- Follow sick day rules for increasing oral glucocorticoids or injectables per your physician’s recommendations
- In general, patients should double their usual glucocorticoid dose in times of acute illness
- In case of inability to take oral glucocorticoids, contact your physician for alternative medicines and regimens
- If experiencing fever, cough, shortness of breath or other symptoms, call both the COVID-19 hotline (check your state government website for contact information) and your primary care physician or endocrinologist
- Monitor symptoms and contact your physician immediately following signs of illness
- Acquire a medical alert bracelet/necklace in case of an emergency
Read more at http://cushings.invisionzone.com/topic/55106-aace-position-statement-coronavirus-covid-19-and-people-with-adrenal-insufficiency-and-cushing%E2%80%99s-syndrome/?tab=comments#comment-475178  Mist
82°/60° Possible New Helpful Endo in Tennessee
Wednesday May 27
Christopher Albergo, M.D. is a board-certified Endocrinologist skilled in general endocrinology, including Hypothyroid, Parathyroid, Thyroid Cancer, Graves' Disease, Pituitary disorders, Adrenal disorders, Hypogonadism , PCOS, Obesity, Diabetes and Osteoporosis. Read more at https://cushieblogger.com/2019/09/25/possible-new-helpful-endo-in-tennessee/ Overcast skies
79°/58° Partly cloudy skies
83°/68° Adrenal Insufficiency
Friday May 29
In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.
Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency Cushing's Disease or Syndrome?
Friday May 29
Cushing’s disease is the most common form of endogenous Cushing’s syndrome. It is caused by a tumor in the pituitary gland that secretes excessive amounts of a hormone called Adrenocorticotropic hormone, or ACTH. Fortunately, this type of tumor is typically benign. Unlike a cancerous (malignant) tumor, a benign tumor stays in its original location and will not spread. After you are diagnosed with Cushing’s syndrome, it is important that your doctor continues the diagnostic process to determine the cause of hypercortisolism.
Read more at http://www.cushings-info.com/index.php?title=Cushing%27s_Disease_or_Syndrome%3F Archived Interview: Charlie (creativeogre)
Friday May 29
Charlie is not yet diagnosed with Cushing’s but has many symptoms. He writes, in part, “I understand that Cushing’s Disease is a very difficult disease to diagnose. However, it seems as though we have had to guide doctors through this process over the past year. If I sound bitter and frustrated, it is because I am! I have not been able to work over the past year. Tasks that used to take me several hours to complete now take two days. I can no longer walk the dog. I do not sleep well at night..” Listen at https://cushieblogger.com/2019/04/28/archived-interview-charlie-creativeogre/
|
|
