Medical ID Jewelry Often Lacks Clear Instructions For Adrenal Insufficiency
Sunday Nov 27
Only 4.8% of patients with adrenal insufficiency who use medical identification jewelry clearly indicate on their emblem the need for urgent parenteral hydrocortisone in the event of an adrenal crisis, potentially jeopardizing the ability to receive proper assistance in an emergency, according to a cross-sectional analysis published in Clinical Endocrinology.
“Although the use of medical identification jewelry is recommended for patients with adrenal insufficiency to assist in the prevention and treatment of an adrenal crisis, the results of this study indicate that this advice is taken up by only a modest proportion of patients,” R. Louise Rushworth, MBBS, PhD, FAFPHM, an adjunct professor and medical epidemiologist at the School of Medicine, Sydney, and the University of Notre Dame Australia, told Endocrine Today. “Patients with secondary adrenal insufficiency have a lower uptake than those with primary adrenal insufficiency despite their risk of an adrenal crisis approaching that people with primary adrenal insufficiency.”
Read more at https://cushieblog.com/2019/04/28/medical-id-jewelry-often-lacks-clear-instructions-for-adrenal-insufficiency/
Basics: Meds: Recorlev
Monday Nov 28
Cushing’s disease is a progressive pituitary disorder in which there is an excess of cortisol in the body. While the disease can be treated surgically, this option is not possible for all patients. This is one of the approved medications that assist in controlling cortisol levels in people with Cushing’s disease.
Recorlev was approved by the FDA in December 2021 to treat those Cushing’s patients for whom surgery is not a choice or has failed to lower cortisol levels.
Read more at https://cushings.invisionzone.com/topic/56549-meds-recorlev/
Add or update Your Bio
Tuesday Nov 29
The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.
I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?
More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/
Janice B, Pituitary Bio
Tuesday Nov 29
I was married 38 years when I became sick in 2011, but the family doctor and my husband wouldn’t believe me. They thought I was lazy, fat and crazy when they shipped me off to a mental ward in a hospital. I knew I was physically sick with Cushing’s Disease, but I couldn’t convince the psychiatrist. I left my husband, got a new doctor and was diagnosed with Cushing’s Disease in 2012. I had successful surgery in April 2013 to remove the pituitary tumor. I had Adrenal Insufficiency and was put on 5mg of prednisone as my body would not produce its own cortisol.
Janice's bio includes a video.
Read more at https://cushingsbios.com/2021/04/27/janice-b-pituitary-bio/
Basics: Testing: Dex Tests
Tuesday Nov 29
Dexamethasone suppression test measures whether adrenocorticotrophic hormone (ACTH) secretion by the pituitary can be suppressed.
How the Test is Performed
Comment added to Magdalena, Food-Dependent Cushing's Bio
Wednesday Nov 30
hello,i found your story while researching gip induced cushings. your story was very touching to me. i am sorry you had to endure all this. it is so completely frusterating when the doctors dont understand .i was recently diagnosed with subclinical cushings but now have more tests confirming high cortisol. i have bilateral tumors causing mine. although recently my symptoms have increased. i am barely able to eat anything without stomach pain and upset. my list of foods that i can eat is becoming increasing small. your story and symptoms of the pain and stomach swelling is the same. sadly also my 13 year old daughter is starting to develop food insensitivities and food intolerances...
Read more at https://cushingsbios.com/2013/06/23/magdalena-food-dependent-cushings-bio/
Home cortisol tests: 3 of the best
Wednesday Nov 30
There are several home cortisol tests available to purchase over the counter or online. These allow a person to take a sample of blood, urine, or saliva before sending it off for analysis.
After taking a home cortisol test, people can usually receive their results within 2–5 days online or via a telephone call with a healthcare professional.
However, there are currently no studies investigating the reliability of these home cortisol tests. Therefore, people should follow up on their test results with a healthcare professional.
Read more at https://cushings.invisionzone.com/topic/55639-home-cortisol-tests-3-of-the-best/
Book: Be Your Own Doctor
Friday Dec 2
...Being constantly diagnosed as “healthy” caused me to be told, when I was finally diagnosed correctly, that I had maybe five years to live. Misdiagnosis can be a killer.… It is now my personal mission and obligation to help those suffering from any chronic illness that steals your joy, and bring awareness to Endocrine Disorders. From my journey through Cushing’s to Addison’s to recovery—from triathlete to barely being able to dress myself and finally to recovering into a stronger person I never knew I was.
Read more at https://amzn.to/2pWMhOh
Saturday Dec 3
After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.
Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately.
Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op
Cushing's Basics: What is Cortisol?
Saturday Dec 3
Cortisol is a hormone which produced by the adrenal gland (cortex) to control blood sugar. The production of cortisol is triggered by the pituitary hormone ACTH. Cortisol is a glucocorticoid which stimulates an increase in blood glucose. Cortisol will also stimulate the release of amino acids from muscle tissue and fatty acids from adipose tissue. The amino acids are then converted in the liver to glucose (for use by the brain). The fatty acids can be used by skeletal muscles for energy (rather than glucose) thereby freeing up glucose for selective utilization by the brain. Cortisol levels are often measured to evaluate the function of the pituitary or adrenal glands. Some of the cortisol is metabolized by the liver to produce 17 hydroxycorticosteroids, which is then excreted in the urine.
Read more at https://cushings.invisionzone.com/topic/56255-what-is-cortisol/