 Clear skies 82°/55°
 Partly cloudy skies 62°/57° Carola B (Carola), Adrenal Bio Monday May 12
On December 26, 2014 she went to a local urgent care clinic with pneumonia, confirmed by an x-ray, for which she was treated. Carola received a phone call from the urgent care clinic a few days afterwards explaining that the radiologist had seen something unusual that needed further examination. After numerous tests her suspected Cushing’s diagnosis was confirmed. Read more at https://cushingsbios.com/2022/06/12/carola-b-carola-adrenal-bio/
 Light rain 68°/61° Add or update Your Bio Tuesday May 13
The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.
I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?
More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/ Helpful Doctors: Dr. Fernandez-Miranda Tuesday May 13
I was then fortunate to continue my clinical training at University of Virginia with several giants of neurosurgery, and I was greatly influenced by the meticulous approach of Dr. Ed Oldfield’s pituitary surgeries, particularly for Cushing’s disease. It was such a joy to watch his precise extracapsular tumor resections. At the same time, I had become totally enchanted by the endoscopic endonasal operations that Dr. Amin Kassam was performing at University of Pittsburgh, and after many requests he finally accepted me for specialized training with him and his team. That was a life changing event for me, as my career was about to be centered in the development and refinement of endoscopic endonasal skull base and pituitary surgery. Read more at https://cushings.invisionzone.com/topic/57673-dr-fernandez-miranda/ Bridget H, Ectopic Cushing's Tuesday May 13
Findling ordered a dotatate PET scan to find where Houser's tumor was, finding it in her left lung. Ultimately, after much deliberation, Houser elected to undergo surgery to remove part of her left lung. A pathologist found the tumor was a rare, slow-growing neuroendocrine lung cancer known as bronchial carcinoid, which can cause Cushing's. Read more at https://cushingsbios.com/2023/11/13/bridget-h-ectopic-cushings/
 Fog 73°/62°
 Fog 80°/60° Basics: Meds - Korlym Thursday May 15
Cushing’s disease is a progressive pituitary disorder in which there is an excess of cortisol in the body. While the disease can be treated surgically, this option is not possible for all patients. This is one of the approved medications that assist in controlling cortisol levels in people with Cushing’s disease. Korlym (mifepristone), developed and marketed by Corcept Therapeutics, is an FDA-approved treatment for high blood sugar (hyperglycemia) in adults with Cushing’s syndrome who have type 2 diabetes or glucose intolerance, and for whom surgery is not an option, or failed to control their symptoms. Read more at https://cushings.invisionzone.com/topic/56598-basics-meds-korlym/
 Fog 87°/63° Cushing's Basics: Testing: Inferior Petrosal Sinus Sampling Friday May 16
Video, personal stories and 'official information'. The MRI still showed nothing, so they did a Petrosal Sinus Sampling Test. That scared me more than the prospect of surgery. (This test carries the risk of stroke and uncontrollable bleeding from the incision points.) Catheters were fed from my groin area to my pituitary gland and dye was injected. I could watch the whole procedure on monitors. I could not move during this test or for several hours afterwards to prevent uncontrollable bleeding from a major artery. The test did show where the tumor probably was located... Read more at https://cushings.invisionzone.com/topic/56225-testing-inferior-petrosal-sinus-sampling/ Archived Interview: Terry G, pituitary patient Friday May 16
Terry (Terry) is a long time pituitary Cushing’s survivor. Terry had a pituitary surgery (in LA) in October of 2003 which did not cure her Cushing’s Disease. Then, Dec 13th, 2003 she had her BLA in a Wisconsin hospital. She also had an infection in her sphenoid sinus. It originated at the site of her pituitary surgery from October 2003. She had to be on a lot of antibiotics and narcotic pain relievers. In Sept 2005 the surgeon remove the infection from one area, making another area clear….. Listen at https://cushieblogger.com/2019/04/16/archived-interview-terry-g-pituitary-patient/
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