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78°/50° Medical ID Jewelry Often Lacks Clear Instructions For Adrenal Insufficiency
Sunday Mar 29
Only 4.8% of patients with adrenal insufficiency who use medical identification jewelry clearly indicate on their emblem the need for urgent parenteral hydrocortisone in the event of an adrenal crisis, potentially jeopardizing the ability to receive proper assistance in an emergency, according to a cross-sectional analysis published in Clinical Endocrinology. “Although the use of medical identification jewelry is recommended for patients with adrenal insufficiency to assist in the prevention and treatment of an adrenal crisis, the results of this study indicate that this advice is taken up by only a modest proportion of patients,” R. Louise Rushworth, MBBS, PhD, FAFPHM, an adjunct professor and medical epidemiologist at the School of Medicine, Sydney, and the University of Notre Dame Australia, told Endocrine Today. “Patients with secondary adrenal insufficiency have a lower uptake than those with primary adrenal insufficiency despite their risk of an adrenal crisis approaching that people with primary adrenal insufficiency.” Read more at https://cushieblog.com/2019/04/28/medical-id-jewelry-often-lacks-clear-instructions-for-adrenal-insufficiency/  Overcast skies
70°/53° Print Your Own Cushing's Brochures
Monday Mar 30
Robin suggested this at the Pittsburgh Cushing's Dinner. These are the ones I gave out at the dinner and send out with the awareness bracelets. I print them on special tri-fold brochure paper and that works out well. I do update these after each meeting, when I have new pictures, so if you print them out, check back now and then for the latest copy smile.gif Newest version has a Columbus, OH picture Print your own Cushing's brochures at http://www.cushings-help.com/downloads/brochure.pdf  Clear skies
68°/46° Support Cushing's Help with iGive
Tuesday Mar 31
Get a free iGive.com account so your favorite cause can earn money every time you shop online. There're over 50,000 causes listed already and if you don't find yours you can add it on the fly. It's free and easy! http://www.igive.com/MaAlgd4
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You Shop. Your Charity Gets Money. For Free.™
iGive is a free service where shopping at any of 1700 stores like Amazon, Travelocity, Overstock, and many more, means a donation to your favorite cause. | Add or update Your Bio
Tuesday Mar 31
The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.
I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?
More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/ Risk for thrombotic events high after Cushing’s syndrome surgery
Tuesday Mar 31
Fleseriu cautioned that the findings do not necessarily suggest that every individual with Cushing’s syndrome needs anticoagulation therapy, as the study was retrospective. Additionally, sex, age, BMI, smoking status, estrogen or testosterone supplementation, diabetes and hypertension — all known factors for increased thrombosis risk among the general population — were not found to significantly increase the risk for developing a thromboembolic event, Fleseriu said. “As significantly more patients have exogenous Cushing’s syndrome than endogenous Cushing’s syndrome and many of these patients undergo surgeries, we hope that our study increased awareness regarding thromboembolic risks and the need to balance advantages of thromboprophylaxis with risk of bleeding,” Fleseriu said Read more at https://cushieblog.com/2019/12/31/risk-for-thrombotic-events-high-after-cushings-syndrome-surgery/ Overcast skies
64°/45° Help Yourself, Part 1
Wednesday Apr 1
Tips for living with Cushing's - before, during and after treatment. Please feel free to add your own tips here! Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control. For specific tips such as Getting Medical Attention for an Adrenal Crisis or how to make an Emergency Kit, please see Helpful Hints Read more at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_1 Partly cloudy skies
66°/42° Bravelets!
Thursday Apr 2
$10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Help family of websites. For nearly 16 years we have provided information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. View all the items here: https://www.bravelets.com/bravepage/cushing-s-help-and-support Recruitment for Cushing's Syndrome Clinical Study
Thursday Apr 2
This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’s Syndrome will be closely followed along with any signs of side effects. Learn more at http://curec.lk/1X0J6kT Book: Be Your Own Doctor
Thursday Apr 2
...Being constantly diagnosed as “healthy” caused me to be told, when I was finally diagnosed correctly, that I had maybe five years to live. Misdiagnosis can be a killer.… It is now my personal mission and obligation to help those suffering from any chronic illness that steals your joy, and bring awareness to Endocrine Disorders. From my journey through Cushing’s to Addison’s to recovery—from triathlete to barely being able to dress myself and finally to recovering into a stronger person I never knew I was. Read more at https://amzn.to/2pWMhOh Partly cloudy skies
71°/43° Adrenal Insufficiency
Friday Apr 3
In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.
Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency Taylor D, Pituitary Bio
Friday Apr 3
Taylor is from Florence SC.. She was a healthy young adult when she started as a student at the University of South Carolina in the fall of 2015, but soon into her college career, she began experiencing several symptoms, such as weight gain, insomnia and panic attacks. Davis spent the next three years going from doctor to doctor trying to get a diagnosis for her symptoms. Read more at https://cushingsbios.com/2019/08/03/taylor-d-pituitary-bio/ Pituitary Post-Op
Saturday Apr 4
After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety. Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately. Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op Why It's Safer Than Ever To Remove Pituitary Tumors
Saturday Apr 4
Pituitary tumors are unusually common. Fifteen percent of adults have one. Most do not cause symptoms or require treatment. If you have one that does, your treatment may involve medication, radiation, and surgery. Removing a pituitary tumor by surgery can be tricky. The gland is surrounded by carotid arteries, optic nerves, and lots of important brain matter. Nor is it easy to access or visualize. But with the help of revolutionary technology and modern expertise, surgeons are now able to remove pituitary tumors in a safe and minimally invasive way. Read more at https://cushieblog.com/2019/07/06/why-its-safer-than-ever-to-remove-pituitary-tumors/
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