Personal Stories - MaryO
Sunday Jun 28
Life changed for me in 1983. At first I noticed I'd stopped having my periods and, of course, I thought I was pregnant. I went to my Gynecologist who had no explanation. Lots of women lose their periods for a variety of reasons so no one thought that this was really significant. Then I got really tired, overly tired. I would take my son to a half hour Choir rehearsal and could not stay awake for the whole time. I would lie down in the back of the van, set an alarm and sleep for the 30 minutes.
Read more at http://www.cushings-info.com/index.php?title=Personal_Stories_-_MaryO Medical ID Jewelry Often Lacks Clear Instructions For Adrenal Insufficiency
Sunday Jun 28
Only 4.8% of patients with adrenal insufficiency who use medical identification jewelry clearly indicate on their emblem the need for urgent parenteral hydrocortisone in the event of an adrenal crisis, potentially jeopardizing the ability to receive proper assistance in an emergency, according to a cross-sectional analysis published in Clinical Endocrinology. “Although the use of medical identification jewelry is recommended for patients with adrenal insufficiency to assist in the prevention and treatment of an adrenal crisis, the results of this study indicate that this advice is taken up by only a modest proportion of patients,” R. Louise Rushworth, MBBS, PhD, FAFPHM, an adjunct professor and medical epidemiologist at the School of Medicine, Sydney, and the University of Notre Dame Australia, told Endocrine Today. “Patients with secondary adrenal insufficiency have a lower uptake than those with primary adrenal insufficiency despite their risk of an adrenal crisis approaching that people with primary adrenal insufficiency.” Read more at https://cushieblog.com/2019/04/28/medical-id-jewelry-often-lacks-clear-instructions-for-adrenal-insufficiency/ Medical Therapies in Cushing’s Syndrome
Sunday Jun 28
Medical therapy has an important, albeit secondary, role in patients with Cushing’s syndrome. While medications are not currently used as definitive therapy of this condition, they can be very effective in controlling hypercortisolism in patients who fail surgery, those who are not surgical candidates, or those whose tumor location is unknown. Medical therapies can be particularly helpful to control hypercortisolism in patients with Cushing’s disease who underwent radiation therapy and are awaiting its salutary effects. Read more at https://cushieblog.com/2016/12/04/medical-therapies-in-cushings-syndrome/ Add or update Your Bio
Tuesday Jun 30
The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.
I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?
More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/ Coronavirus (COVID-19) and People with Adrenal Insufficiency and Cushing’s Syndrome
Tuesday Jun 30
Studies have reported that individuals with adrenal insufficiency have an increased rate of respiratory infection-related deaths, possibly due to impaired immune function. As such, people with adrenal insufficiency should observe the following recommendations: - Maintain social distancing to reduce the risk of contracting COVID-19
- Continue taking medications as prescribed
- Ensure appropriate supplies for oral and injectable steroids at home, ideally a 90-day preparation
- In the case of hydrocortisone shortages, ask your pharmacist and physician about replacement with different strengths of hydrocortisone tablets that might be available. Hydrocortisone (or brand name Cortef) tablets have 5 mg, 10 mg or 20 mg strength
- In cases of acute illness, increase the hydrocortisone dose per instructions and call the physician’s office for more details
- Follow sick day rules for increasing oral glucocorticoids or injectables per your physician’s recommendations
- In general, patients should double their usual glucocorticoid dose in times of acute illness
- In case of inability to take oral glucocorticoids, contact your physician for alternative medicines and regimens
- If experiencing fever, cough, shortness of breath or other symptoms, call both the COVID-19 hotline (check your state government website for contact information) and your primary care physician or endocrinologist
- Monitor symptoms and contact your physician immediately following signs of illness
- Acquire a medical alert bracelet/necklace in case of an emergency
Read more at http://cushings.invisionzone.com/topic/55106-aace-position-statement-coronavirus-covid-19-and-people-with-adrenal-insufficiency-and-cushing%E2%80%99s-syndrome/?tab=comments#comment-475178 Joseph Ransohoff was born in 1915
Wednesday Jul 1
(1915) Russian-Jewish neuroscientist Joseph Ransohoff was born. He is known pioneering the use of medical imaging in the diagnosis and treatment of brain tumors. Michalina Wisłocka was born in 1921
Wednesday Jul 1
(1921) Polish gynecologist and sexologist Michalina Wisłocka was born. She was the co-founder of the Society of Sensible Maternity, where she worked on infertility treatment and birth control. Help Yourself, Part 1
Wednesday Jul 1
Tips for living with Cushing's - before, during and after treatment. Please feel free to add your own tips here! Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control. For specific tips such as Getting Medical Attention for an Adrenal Crisis or how to make an Emergency Kit, please see Helpful Hints Read more at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_1 New Helpful Doctor added to Washington, DC
Wednesday Jul 1
Susmeeta Sharma, MD, is the director of pituitary endocrinology at the MedStar Pituitary Center. Dr. Sharma has extensive experience in evaluating and treating patients with pituitary disorders such as prolactinoma, Cushing's disease, acromegaly, non-functioning pituitary tumors, adrenal insufficiency and other pituitary hormone deficiencies. Her clinical research interests include pathogenesis and diagnosis of hormonally active pituitary tumors as well as development of non-surgical treatment modalities for management of pituitary tumors. Read more at https://cushieblogger.com/2020/06/01/helpful-doctors-washington-d-c/ Book: Be Your Own Doctor
Thursday Jul 2
...Being constantly diagnosed as “healthy” caused me to be told, when I was finally diagnosed correctly, that I had maybe five years to live. Misdiagnosis can be a killer.… It is now my personal mission and obligation to help those suffering from any chronic illness that steals your joy, and bring awareness to Endocrine Disorders. From my journey through Cushing’s to Addison’s to recovery—from triathlete to barely being able to dress myself and finally to recovering into a stronger person I never knew I was. Read more at https://amzn.to/2pWMhOh  Sunny skies
88°/76° Taylor D, Pituitary Bio
Friday Jul 3
Taylor is from Florence SC.. She was a healthy young adult when she started as a student at the University of South Carolina in the fall of 2015, but soon into her college career, she began experiencing several symptoms, such as weight gain, insomnia and panic attacks. Davis spent the next three years going from doctor to doctor trying to get a diagnosis for her symptoms. Read more at https://cushingsbios.com/2019/08/03/taylor-d-pituitary-bio/  Patchy rain possible
89°/73° Marie Curie died in 1934
Saturday Jul 4
(1934) Polish and naturalized-French physicist and chemist Marie Curie passes away. She is remembered for her work in radiation and the development of the theory of radioactivity. Pituitary Post-Op
Saturday Jul 4
After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety. Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately. Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op Why It's Safer Than Ever To Remove Pituitary Tumors
Saturday Jul 4
Pituitary tumors are unusually common. Fifteen percent of adults have one. Most do not cause symptoms or require treatment. If you have one that does, your treatment may involve medication, radiation, and surgery. Removing a pituitary tumor by surgery can be tricky. The gland is surrounded by carotid arteries, optic nerves, and lots of important brain matter. Nor is it easy to access or visualize. But with the help of revolutionary technology and modern expertise, surgeons are now able to remove pituitary tumors in a safe and minimally invasive way. Read more at https://cushieblog.com/2019/07/06/why-its-safer-than-ever-to-remove-pituitary-tumors/
|
|
