Medical ID Jewelry Often Lacks Clear Instructions For Adrenal Insufficiency
Sunday Sep 27
Only 4.8% of patients with adrenal insufficiency who use medical identification jewelry clearly indicate on their emblem the need for urgent parenteral hydrocortisone in the event of an adrenal crisis, potentially jeopardizing the ability to receive proper assistance in an emergency, according to a cross-sectional analysis published in Clinical Endocrinology.
“Although the use of medical identification jewelry is recommended for patients with adrenal insufficiency to assist in the prevention and treatment of an adrenal crisis, the results of this study indicate that this advice is taken up by only a modest proportion of patients,” R. Louise Rushworth, MBBS, PhD, FAFPHM, an adjunct professor and medical epidemiologist at the School of Medicine, Sydney, and the University of Notre Dame Australia, told Endocrine Today. “Patients with secondary adrenal insufficiency have a lower uptake than those with primary adrenal insufficiency despite their risk of an adrenal crisis approaching that people with primary adrenal insufficiency.”
Read more at https://cushieblog.com/2019/04/28/medical-id-jewelry-often-lacks-clear-instructions-for-adrenal-insufficiency/
Medical Therapies in Cushing’s Syndrome
Sunday Sep 27
Medical therapy has an important, albeit secondary, role in patients with Cushing’s syndrome. While medications are not currently used as definitive therapy of this condition, they can be very effective in controlling hypercortisolism in patients who fail surgery, those who are not surgical candidates, or those whose tumor location is unknown. Medical therapies can be particularly helpful to control hypercortisolism in patients with Cushing’s disease who underwent radiation therapy and are awaiting its salutary effects.
Read more at https://cushieblog.com/2016/12/04/medical-therapies-in-cushings-syndrome/
Add or update Your Bio
Tuesday Sep 29
The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.
I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?
More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/
New Helpful Doctor added to Washington, DC
Thursday Oct 1
Susmeeta Sharma, MD, is the director of pituitary endocrinology at the MedStar Pituitary Center. Dr. Sharma has extensive experience in evaluating and treating patients with pituitary disorders such as prolactinoma, Cushing's disease, acromegaly, non-functioning pituitary tumors, adrenal insufficiency and other pituitary hormone deficiencies. Her clinical research interests include pathogenesis and diagnosis of hormonally active pituitary tumors as well as development of non-surgical treatment modalities for management of pituitary tumors.
Read more at https://cushieblogger.com/2020/06/01/helpful-doctors-washington-d-c/
Book: Be Your Own Doctor
Friday Oct 2
...Being constantly diagnosed as “healthy” caused me to be told, when I was finally diagnosed correctly, that I had maybe five years to live. Misdiagnosis can be a killer.… It is now my personal mission and obligation to help those suffering from any chronic illness that steals your joy, and bring awareness to Endocrine Disorders. From my journey through Cushing’s to Addison’s to recovery—from triathlete to barely being able to dress myself and finally to recovering into a stronger person I never knew I was.
Read more at https://amzn.to/2pWMhOh
Saturday Oct 3
After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.
Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately.
Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op
WP Thyroid and Nature-Throid recall-August 2020
Saturday Oct 3
Dr. Friedman prescribes various thyroid hormone preparations to his patients with hypothyroidism. This includes natural desiccated thyroid (NDT) of which two preparations are WP Thyroid and Nature-Throid, both made by RLC Labs. On August 25, 2020, RLC Labs announced a voluntary, consumer-level recall of all lots of Nature-Throid and WP Thyroid tablets because some lots contain less than the required 90% of the active ingredient as determined by the FDA. The RLC spokesperson said to Dr. Friedman that one lot of WP Thyroid and 5 lots of Nature-Throid contained between 87% and 90% of the labeled amount of levothyroxine (T4) or liothyronine (T3). The recall did not disclose which of the lots were affected and all lots are recalled, not just the affected lots. According to the recall, if a patient receives a sub-potent tablet, hypothyroid symptoms may not be controlled. To date, there have been no reports of adverse events related to this recall. Patients who have had an adverse event should contact RLC Labs.
Read more at http://cushings.invisionzone.com/topic/55326-wp-thyroid-and-nature-throid-recall-august-2020/?tab=comments#comment-475509