Basics: Meds - Korlym
Monday Aug 15
Cushing’s disease is a progressive pituitary disorder in which there is an excess of cortisol in the body. While the disease can be treated surgically, this option is not possible for all patients. This is one of the approved medications that assist in controlling cortisol levels in people with Cushing’s disease.
Korlym (mifepristone), developed and marketed by Corcept Therapeutics, is an FDA-approved treatment for high blood sugar (hyperglycemia) in adults with Cushing’s syndrome who have type 2 diabetes or glucose intolerance, and for whom surgery is not an option, or failed to control their symptoms.
Read more at https://cushings.invisionzone.com/topic/56598-basics-meds-korlym/
Add or update Your Bio
Tuesday Aug 16
The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.
I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?
More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/
Cushing's Basics: Testing: Inferior Petrosal Sinus Sampling
Tuesday Aug 16
Video, personal stories and 'official information'.
The MRI still showed nothing, so they did a Petrosal Sinus Sampling Test. That scared me more than the prospect of surgery. (This test carries the risk of stroke and uncontrollable bleeding from the incision points.)
Catheters were fed from my groin area to my pituitary gland and dye was injected. I could watch the whole procedure on monitors. I could not move during this test or for several hours afterwards to prevent uncontrollable bleeding from a major artery.
The test did show where the tumor probably was located...
Read more at https://cushings.invisionzone.com/topic/56225-testing-inferior-petrosal-sinus-sampling/
Archived Interview: Terry G, pituitary patient
Tuesday Aug 16
Terry (Terry) is a long time pituitary Cushing’s survivor. Terry had a pituitary surgery (in LA) in October of 2003 which did not cure her Cushing’s Disease. Then, Dec 13th, 2003 she had her BLA in a Wisconsin hospital. She also had an infection in her sphenoid sinus. It originated at the site of her pituitary surgery from October 2003. She had to be on a lot of antibiotics and narcotic pain relievers. In Sept 2005 the surgeon remove the infection from one area, making another area clear…..
Listen at https://cushieblogger.com/2019/04/16/archived-interview-terry-g-pituitary-patient/
New Helpful Endo in Tennessee?
Friday Aug 19
CHI Memorial Medical Group announces the opening of CHI Memorial Endocrinology Associates, a practice that provides comprehensive medical management and care for conditions like type 1 and 2 diabetes, thyroid disease, thyroid cancer and a range of metabolic, pituitary and adrenal disorders.
The practice will be led by Prashanth Sekhar, MD, a fellowship trained endocrinologist with more than 10 years’ experience helping individuals with hormone-related conditions and diseases.
Read more at https://cushings.invisionzone.com/topic/56496-new-helpful-endo-in-tennessee/