Natalie had a BLA in March, 2008. She died April 21, 2008at the age of 42 and had recently had a BLA.

I first met Natalie at a local lunch in November of 2001 and have seen her several times since then.

Read Natalie's bio at https://cushingsbios.com/2015/04/21/in-memory-of-natalie-april-21-2008/

The image above is from our first local meeting, here in Northern VA – note the 6 Cushing St. sign behind us. Natalie was the Cushie in the middle.

Today is the anniversary of Natalie’s death. Last month was the anniversary of Sue’s death. I wrote about Janice earlier.

Read more at https://cushieblogger.com/2019/04/21/day-21-cushings-awareness-challenge-2019/

Dr. Krisht earned the honor — sometimes known as the Nobel Prize for neurosurgery — for his cerebrovascular, pituitary and skull base tumor surgery work.

Read more at https://cushieblogger.com/2019/03/21/dr-ali-krisht-receives-2019-herbert-olivecrona-award/

Unfortunately, problems with the pituitary gland may not always be visible on MRIs or other imaging tests because the pituitary is so small. Endocrinologists who handle hormone therapy frequently are not familiar with brain injuries, and may not make the connection that your brain injury was the cause of the problem.

Read more at http://cushieblog.com/2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury

I see a doctor at Vanderbilt who specializes in Cushings. I am very grateful that I found her but she never talks about the fatigue. I really wish this was discussed more. I’m not even sure if I have the energy to continue to work...

In the comments area of https://cushingsbios.com/2018/04/03/tamara-k-pituitary-bio/

Mutations in USP48 and BRAF genes contribute to the overproduction of adrenocorticotropin (ACTH) hormone by the pituitary gland and consequent development of Cushing’s disease, a study shows, linking these genes to the disease for a first time.

The study, “Identification of recurrent USP48 and BRAF mutations in Cushing’s disease,” published in the journal Nature Communications, also identified a possible treatment for patients with BRAF-related mutations.

...

It is still not clear why some people develop these tumors, but studies have pointed to mutations in the USP8 gene as a possible cause. They are present in 35%–62% of all tumor cases, and influence treatment response and long-term outcomes.

Read more at https://cushieblog.com/2018/11/21/mutations-in-two-genes-usp48-and-braf-linked-to-cushings-disease/

In 2006, I flew to Chicago, IL for a Cushing's weekend in Rockford.  Someone else drove us to Lake Geneva, Wisconsin for the day.  Too much travel, too Cushie, whatever, I was too tired to stay awake.  I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa instead.  Amazing that I traveled that whole distance – and missed the main event?

Read more at https://cushieblogger.com/2019/04/05/day-5-cushings-awareness-challenge-2019/

Image-guided (navigation-assisted) endoscopic trans-nasal trans-sphenoidal pituitary surgery is what we are about to view being performed in the country (Sri Lanka) only since October this year. For, the 38-year-old patient lying inert on the operating table has a tumour just above her pituitary gland, between the optic nerves and the carotid arteries, making it a difficult operation-site to access. (The pea-size pituitary gland is dubbed the ‘master gland’ as it produces many hormones for the whole body, while also stimulating other glands to produce other hormones.)

Read more at https://cushieblog.com/2016/12/21/into-the-brain-through-the-nostrils-sri-lanka/

Clinicians should be aware that even extremely low doses of topical ocular steroid therapy can cause iatrogenic Cushing's Syndrome.

Read more at https://cushieblog.com/2017/01/21/topical-ocular-glucocorticoid-leads-to-cushings-syndrome-in-9-year-old/

A clear understanding of the pitfalls in the performance and interpretation of adrenal CT can help prevent incorrect and inappropriate investigations, award-winning researchers from a top London facility have found. It's essential to keep aware of the full range of pseudolesions and mimics, they said.

'Evaluation of adrenal tumor function is limited on imaging, but may be inferred from imaging findings,' noted Dr. Gurinder Nandra and colleagues from the department of radiology at St. George's University Hospitals NHS Foundation Trust in an e-poster presentation that received a cum laude award at RSNA 2018 in Chicago.

Read more at https://cushieblog.com/2019/01/21/how-to-avoid-pitfalls-in-interpretation-of-adrenal-imaging/

I always struggle with what to say, or how much to say, about my chronic illnesses.  Someone might make a comment like, 'You look so tan!  Have you been on vacation?'  and I am not tan from the sun, I am tan because of my rising ACTH levels, or maybe because I am jaundiced...

Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-21.html

I remember my first guest post in 2007, was overjoyed to find I wasn't the only medical anomaly lol!

Congratulations to Cushing's Help for coming of age! ?

Posted at https://cushieblogger.com/testimonial/melanie-c/

A “friend” pushed me and I hit my head on a radiator and broke it and a few months after a tumor grew. I’ve been having symptoms ever since. Could I go after here and get compensation for medical care I need now?

in the comments area of http://cushieblog.com/2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury

Leslie had pituitary tumors removed twice at the University Of Michigan. After her second surgery she gave birth to her second baby. She has had another recurrence and has had Gamma Knife Radiation April 3, 2008.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/22/interview-with-jackie-samsmon-jordan (The URL appears incorrect due to last minute guest changes.)

Adrenal insufficiency is a condition that develops when most of the adrenal gland is not functioning normally. Primary adrenal insufficiency arises due to the damage of the glands or because of using drugs that halt synthesis of cortisol. On the other hand, secondary adrenal insufficiency stems from processes that inhibit the secretion of the adrenocorticotropic hormone (ACTH) by the hypophysis as a result of a hypothalamic or pituitary pathology. The former is sometimes also referred to as tertiary adrenal insufficiency.

Read more at https://cushieblog.com/2016/11/20/adrenal-insufficiency-primary-and-secondary/

What do you think?  Are your allergies worse or are you having new ones after being post-op Cushing's?

Read more at https://cushieblogger.com/2018/10/21/what-do-you-think-2/

http://www.cushings-info.com/index.php?title=Pituitary_Hormones

In 1986 I was finally diagnosed with Cushing's after struggling with doctors and trying to get them to test for about 5 years. I was going to go into the NIH (National Institutes of Health) in Bethesda, MD for final testing and then-experimental pituitary surgery.
I was terrified and sure that I wouldn’t survive the surgery...

Read more at https://cushieblogger.com/2018/04/22/day-22-cushings-awareness-challenge-2018/

I have seen this image several places online and it never ceases to crack me up. Sometimes, we really have strange things going on inside our bodies.

Read more at https://cushieblogger.com/2019/04/22/day-22-cushings-awareness-challenge-2019/

This could be me! I need to talk to the person who wrote this. We have so much in common! We need to chat,

Read the original bio at https://cushingsbios.com/2015/06/16/diana-m-dbear12003-adrenal-bio/

Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol....

Read more at  https://cushieblogger.com/2018/04/22/myths-and-facts-about-cushings-each-person-requires-the-same-dose-of-steroid-in-order-to-survive/

I definitely know how you feel. My MRI confirmed a Pituitary Tumor 13x16mm (benign/macroadenoma). Just got officially diagnosed last week...

In the comments area of https://cushingsbios.com/2018/04/02/roxanna-dawn-undiagnosed-bio/

In 2006, I flew to Chicago, IL for a Cushing's weekend in Rockford.  Someone else drove us to Lake Geneva, Wisconsin for the day.  Too much travel, too Cushie, whatever, I was too tired to stay awake.  I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa instead.  Amazing that I traveled that whole distance – and missed the main event?

Read more at https://cushieblogger.com/2019/04/05/day-5-cushings-awareness-challenge-2019/

... I have every single symptom of Cushing’s, and I believe it is cyclical and has been happening for about 26 years. It will be what kills me, I fear. Of course, it will be deemed because of obesity and health issues related to it. It is frustrating that doctors just think-it’s so rare, this cannot be what’s wrong. I think it is rarely diagnosed because it us hard to get the tests to give the accurate information. I do not think they will ever diagnose me...

Read more at http://wp.me/p3tb2N-r0

Steroids are my BFFs, but at the same time, they are the enemy.  When I had Cushing's, steroids, whether produced from your body or taken in pill form, were the absolute worst.  Now, my life depends on them. 

It's a hard switch to flip, and years later, still finding myself battling the need to hate them.   I hate taking medication daily. I hate bringing pill bottles, needles, and vials filled with steroids everywhere I go.

Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-22.html

Steve Owens (sowens) returned on May 29, 7:30. His topic was building up support networks and using available agencies to get back to work (rehab, PT/OT, job coaches, etc)...

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/29/steve-owens-sowens-returns-to-talk-about-support-networks-and-agencies

Yes absolutely. Post surgery 7 years and I have low tolerance for food and real allergies to things and food.

From https://cushieblogger.com/2018/10/21/what-do-you-think-2/

The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.

I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?

More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/

I was diagnosed with ACTH independent cyclical cushings. It took 5 years to get a diagnosis...

In the comments area of https://cushieblogger.com/2018/04/16/myths-and-facts-about-cushings-ufcs-are-the-gold-standard-for-cushings-testing/

Louise from Washington   She has ACTH independent bilateral adrenal hyperplasia.

Read her bio at https://cushingsbios.com/2018/11/23/louise-adrenal-bio/

Patients with adrenal insufficiency may accrue substantial health care costs and have more hospital stays and outpatient visits compared with healthy controls, according to findings published in the Journal of the Endocrine Society.

Read more at https://cushieblog.com/2017/04/23/health-care-expenditure-burden-high-in-adrenal-insufficiency/

Being a caretaker is hard work.  Especially when you are taking care of someone with a chronic illness.  I have experienced being on both ends, as the person being taken care of, and the caretaker.

Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-23.html

In 2006, I flew to Chicago, IL for a Cushing's weekend in Rockford.  Someone else drove us to Lake Geneva, Wisconsin for the day.  Too much travel, too Cushie, whatever, I was too tired to stay awake.  I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa instead.  Amazing that I traveled that whole distance – and missed the main event?

Read more at https://cushieblogger.com/2019/04/05/day-5-cushings-awareness-challenge-2019/

Patients with subclinical hypercortisolism, i.e., without symptoms of cortisol overproduction, and adrenal incidentalomas recover their hypothalamic-pituitary-adrenal (HPA) axis function after surgery faster than those with Cushing’s syndrome (CS), according to a study.

Read more at https://cushieblog.com/2018/10/23/most-subclinical-cushings-patients-dont-require-glucocorticoids-after-adrenalectomy/

...I don’t eat much but have fat deposits in the areas associated with Cushing’s. My skin tears easily, I bruise easily, I have digestive disturbances, my face is rounder, my hair is way thinner, I have aches and pain which is mail a very stiff and aching neck. I have other offers places of pain that seem to change locations. I have double vision that gets better and then worse....

In the comments area of https://cushieblog.com/2013/02/20/early-detection-treatment-needed-to-reduce-risk-of-death-cardiovascular-disease-in-cushings-disease-patients/

Heather, pituitary surgery on January 18, 2006 after years of medical problems, June 5, 7:30PM 

Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/05/interview-with-heather-s-pituitary-cushings-survivor

Cushings-Help has provided information and support for people with Cushing's or other endocrine problems, their friends and families for over 15 years.

The Cushings Help family of websites and the message boards are growing fast. Each has outgrown it's web server and had to be moved to accommodate this growth.

Read more at http://fnd.us/apR55?ref=sh_73Ppz4

Today’s Cushing's Awareness Challenge post is about kidney cancer (renal cell carcinoma). You might wonder how in the world this is related to Cushing's. I think it is, either directly or indirectly.

Read more at  https://cushieblogger.com/2018/04/24/day-24-cushings-awareness-challenge-2018/

Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you'll want to know.

Find them at http://www.cushings-help.com/definitions.htm

Cushing's patients also have pronounced memory problems, especially for facts like where a car was parked. 'The hippocampus is essential for transferring such facts from short-term to long-term memory,' said Dr. Sapolsky.

Read more at https://cushieblog.com/2016/10/24/severe-trauma-may-damage-the-brain-as-well-as-the-psyche/

Fact:  However, in the case of the chronically ill, a different cycle occurs. In the chronically ill, the person loses his normal health. He goes through a period of treatment and sometimes recovers...

Read more at https://cushieblogger.com/2018/04/24/myths-and-facts-about-cushings-you-should-be-all-better-by-now/

So many people around the word have invisible illnesses, many of those illnesses can be disabling.  For me, it is not one illness alone that can be disabling. It is the combination of many, and maybe even medication side...

Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-24.html

In 2006, I flew to Chicago, IL for a Cushing's weekend in Rockford.  Someone else drove us to Lake Geneva, Wisconsin for the day.  Too much travel, too Cushie, whatever, I was too tired to stay awake.  I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa instead.  Amazing that I traveled that whole distance – and missed the main event?

Read more at https://cushieblogger.com/2019/04/05/day-5-cushings-awareness-challenge-2019/

Is itching common with Cushing’s Syndrome?  Is it common to feel somewhat good for a day and then have itching, high blood pressure, nausea, flushed red face?

Please either respond here or in the comments at https://cushieblogger.com/2018/05/30/guest-question-is-itching-common-with-cushings-syndrome/

A plasma adrenocorticotropic hormone suppression test performed shortly after surgical adenomectomy may accurately predict both short- and long-term remission of Cushing’s disease.

Read more at https://cushieblog.com/2018/08/24/acth-test-after-adenomectomy-may-accurately-predict-cushings-disease-remission/

Cushing’s disease patients whose pituitary tumors carry a USP8 mutation are more likely to achieve remission after surgery than those without such mutations, a retrospective Italian study found.

Read more at https://cushieblog.com/2018/10/24/cushings-disease-patients-with-usp8-mutations-more-likely-to-achieve-remission-after-surgery/

James Findling, MD, is a veteran of the endocrinology field, a clinical practitioner and a Cushing’s syndrome expert. For his efforts in these areas, particularly clinical practice, the Endocrine Society is honoring him with its Outstanding Clinical Practitioner Award at ENDO 2019 in New Orleans.

Read more at https://cushieblogger.com/2019/03/24/cushings-syndrome-expert-a-standout-in-clinical-practice/

Dr. Dori Middleman is a Psychophamacologist, Certified Gestalt Psychotherapist and Cushing’s Patient.

She has had both pituitary surgery and two gamma knife radiosurgeries.

Listen at https://cushieblogger.com/2018/04/24/archived-interview-with-dr-dori-middleman-pituitary-cushings-survivor/

... I have a right side adrenal adenoma and have experienced a number of the things that you wrote about over the years. Have you had an adrenalectomy?... 

Read more at https://cushingsbios.com/2015/07/24/jason-adrenal-bio/

The pituitary gland stimulates all the other endocrine glands to produce their own hormones.

Read more at https://cushieblog.com/2016/09/07/all-about-the-pituitary-gland/

Christine Miserandino (2010) uses the spoon theory to answer the question, “What does it feel like to be sick?” The spoons serve as a symbol for resources available and energy spent to get through every moment of every day.

Read more at https://cushieblogger.com/2018/04/26/myths-and-facts-about-cushings-even-though-you-are-chronically-ill-you-should-have-the-same-amount-of-energy-every-day/

Nursing notes and video on Addison's Disease and Cushing's Syndrome/Disease

Read more at https://cushieblog.com/2016/05/02/addisons-disease-vs-cushings-syndrome-nursing/

The signs and symptoms of Cushing's syndrome vary from person to person making Cushing's a really hard disease to diagnose.

Read more at http://www.cushings-info.com/index.php?title=Symptoms

I’ll never know if that hit on my head contributed to my Cushing's but I have seen several people mention on the message boards that they had a traumatic head injury of some type in their earlier lives.

Read more at https://cushieblogger.com/2018/04/25/day-25-cushings-awareness-challenge-2018/

In 2006, I flew to Chicago, IL for a Cushing's weekend in Rockford.  Someone else drove us to Lake Geneva, Wisconsin for the day.  Too much travel, too Cushie, whatever, I was too tired to stay awake.  I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa instead.  Amazing that I traveled that whole distance – and missed the main event?

Read more at https://cushieblogger.com/2019/04/05/day-5-cushings-awareness-challenge-2019/

The Endocrine Society today (10/13/16) issued a Clinical Practice Guideline that recommends treating insufficient hormone levels in individuals with hypopituitarism by replacing hormones at levels as close to the body's natural patterns as possible.

Read more at https://cushieblog.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/

Did you know that dogs and horses get Cushing's too? 

Horses and dogs have similar symptoms to humans, like muscle weakness in their legs, and central obesity.  Horses' hair gets curly too!

Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-25.html

This video depicts an endoscopic transsphenoidal pituitary approach for a patient with a non-functioning macroadenoma. 

See the video at https://cushieblogger.com/2019/03/25/endoscopic-transsphenoidal-approach-for-pituitary-tumor-resection/

Donna Sellers, President, John’s Foundation for Cushing’s Awareness, mother of a Cushing’s patient.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/19/interview-with-donna-sellers-mother-of-a-cushings-patient

In children and adults with Cushing’s syndrome, the relationship between increased cortisol levels and higher blood pressure has also been reported. Patients with Cushing’s syndrome may remain hypertensive even after surgery to lower their cortisol levels, suggesting their hypertension is caused by changes in blood vessels.

Read more at https://cushieblog.com/2018/04/25/blood-lipid-levels-linked-to-high-blood-pressure-in-cushings-disease-patients/

Diagnosis is based on a review of the patient's medical history, physical examination and laboratory tests. Often x-ray exams of the adrenal or pituitary glands are useful for locating tumors. These tests help to determine if excess levels of cortisol are present and why.

No single lab test is perfect, and usually, several are needed. The three most common tests used to diagnose Cushing's syndrome are the 24-hour urinary free cortisol test, the measurement of midnight plasma cortisol or late-night salivary cortisol, and the low-dose dexamethasone suppression test (LDDST). Another test, the dexamethasone-corticotropin-releasing hormone (dexamethasone-CRH) test, may be needed to distinguish Cushing's syndrome from other causes of excess cortisol.

Read more at http://www.cushings-info.com/index.php?title=Diagnostic_Testing

In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.

Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency

The original image was one a couple males, a couple females and a dog walking/running. No folks in wheelchairs, no older folks and certainly no zebras.

It would be nice to have everyone out there walking or running but that’s not real life, at least in the Cushie world. It’s been a long time since I’ve really been In My Life – maybe it’s time to get back.

Read more at Day 26: Cushing’s Awareness Challenge 2018

Cushing’s disease is the most common form of endogenous Cushing’s syndrome. It is caused by a tumor in the pituitary gland that secretes excessive amounts of a hormone called Adrenocorticotropic hormone, or ACTH. Fortunately, this type of tumor is typically benign. Unlike a cancerous (malignant) tumor, a benign tumor stays in its original location and will not spread. After you are diagnosed with Cushing’s syndrome, it is important that your doctor continues the diagnostic process to determine the cause of hypercortisolism.

Read more at http://www.cushings-info.com/index.php?title=Cushing%27s_Disease_or_Syndrome%3F

Cerce is from Rohnert Park, CA.  It has been 26 years since her first symptom of excruciating unrelenting back, and neck,  jaw, and temple pain.  She has been diagnosed with  Hashimoto's and is testing for Cushing's now.

Read more at https://cushingsbios.com/2018/10/26/cerce-h-undiagnosed-bio/

The Pituitary Network Association is one of my favorite resources for getting information about pituitary related things.  They have published a Patient's Bill of Rights that I have referred back to hundreds of times.  I used to have it hanging at my desk at work.

Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-26.html

When classifying patients by tumor size, however, researchers found that patients with macroadenomas — tumors larger than 10 mm — had higher rates of remission and lower recurrence rates after endoscopic surgery. Patients with microadenomas (tumors smaller than 10 mm) had comparable outcomes with either technique.

Read more at https://cushieblog.com/2018/05/26/endoscopic-surgery-should-be-standard-for-cushings-patients-with-large-tumors/

Many thanks to everyone who is making a difference and helping Cushing's Help stay afloat for another year!

Read more at https://cushieblogger.com/2018/07/26/many-thanks/ 

Mak is from California  She has been having a really rough couple years with a multitude of symptoms.  A  6mm microadenoma was found on her pituitary gland.

Read her bio at https://cushingsbios.com/2018/11/26/mak-m-pituitary-bio/

In 2006, I flew to Chicago, IL for a Cushing's weekend in Rockford.  Someone else drove us to Lake Geneva, Wisconsin for the day.  Too much travel, too Cushie, whatever, I was too tired to stay awake.  I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa instead.  Amazing that I traveled that whole distance – and missed the main event?

Read more at https://cushieblogger.com/2019/04/05/day-5-cushings-awareness-challenge-2019/

The child’s excess fat was mainly in his abdomen plus he had a round, red, puffy face, which are both common features of Cushing’s disease. He had no history of acute or chronic steroid intake, mood swings, sleep disorders, or issues with eyesight.

Given his clinical presentation, the investigators suspected the boy had Cushing’s disease or pseudo-Cushing’s disease, which refers to situations where the overproduction of cortisol is caused by something unrelated to the disease, such as stress or uncontrolled diabetes mellitus.

Read more at https://cushieblog.com/2018/10/26/rare-case-of-cushings-disease-diagnosed-in-7-year-old-boy/

Charlie is not yet diagnosed with Cushing’s but has many symptoms. He writes, in part, “I understand that Cushing’s Disease is a very difficult disease to diagnose. However, it seems as though we have had to guide doctors through this process over the past year. If I sound bitter and frustrated, it is because I am! I have not been able to work over the past year. Tasks that used to take me several hours to complete now take two days. I can no longer walk the dog. I do not sleep well at night..”

Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/10/interview-with-charlie-creativeogre

...my life has changed significantly since my last interview, and I could talk about losing my job and applying for Social Security at such a young age. And the issues about self-esteem tied to a career, and risk of depression and isolation...

Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/26/alicia-returns-for-a-second-interview-just-after-her-social-security-disability-medical-screening

Michele  is from Buffalo, NY  She had herright adrenal gland and a pheochromocytoma removed. The Pathologist and endocrinologist diagnosed her with Cushings Disease.

Read more at https://cushingsbios.com/2019/01/26/michele-m-michele-adrenal-bio/

Tumors located outside the pituitary gland that produce the adrenocorticotropic hormone (ACTH) may cause, on rare occasions, cyclic Cushing’s syndrome — when cortisol levels show substantial fluctuations over time.

That finding, based on the case of a patient with ACTH-secreting lung cancer,  is found in the study, “Cyclic Cushing’s syndrome caused by neuroendocrine tumor: a case report,” which was published in Endocrine Journal.

Read more at https://cushieblog.com/2019/01/26/patient-develops-cyclic-cushings-syndrome-due-to-lung-neuroendocrine-tumor/

http://www.cushings-info.com/index.php?title=Pituitary_Hormones

People sometimes ask me how I found out I had Cushing’s Disease.  Theoretically, it was easy.  In practice, it was very difficult.

Read more at https://cushieblogger.com/2018/04/27/day-27-cushings-awareness-challenge-2018/

After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.

Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately.

Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op

It is hard to be a good friend when you are sick.  Illness is all consuming.  Not many people my age really understand that.  At 30-something, most are consumed with careers, finding who you want to spend your life with, having kids, even buying homes.  Illness is a foreign subject.  No one knows what to say when I bring up anything health related.  The room gets quiet.  

On the other hand, illness is my whole life.  I don't know anything about having a real career, having a boyfriend, buying anything major, let alone a home.  And kids are not even on my radar yet.  My life is filled with medications..

Read more at http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-27.html

Because tumors within the skull cannot be palpated, researchers used Magnetic Resonance Elastography (MRE) to assess pituitary tumor stiffness by measuring waves transmitted through the skull into pituitary macroadenomas (PMAs). MRE reliably identified tumors that were soft enough for removal with a minimally-invasive suction technique versus harder tumors requiring more invasive surgery.

Read more at https://cushieblog.com/2017/01/28/imaging-technique-measures-tumor-stiffness-to-aid-surgical-planning/

Kate (Fairley), July 17, 2008. Kate had symptoms since 1991. She had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituitarism and a CSF leak. She has appeared on National Geographic TV in the Science of Obesity.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/17/interview-with-kate-fairley

Sadly, Kate was only 46 when she died on June 23, 2014.  Her bio and video can be found here: https://cushingsbios.com/2015/06/23/1623/

In 2006, I flew to Chicago, IL for a Cushing's weekend in Rockford.  Someone else drove us to Lake Geneva, Wisconsin for the day.  Too much travel, too Cushie, whatever, I was too tired to stay awake.  I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa instead.  Amazing that I traveled that whole distance – and missed the main event?

Read more at https://cushieblogger.com/2019/04/05/day-5-cushings-awareness-challenge-2019/

The Guest Forum has returned.  At the moment, new guest questions are not moderated.

Check it out at http://cushings.invisionzone.com/index.php?/forum/316-guest-forum/

Happy B-day MaryO & the message boards! Mary, I'm convinced you won't know till you get to heaven, how many lives you've help save & how much comfort you've brought to some of the sickest people on earth. Can't thank you enough!

Read more at https://cushieblogger.com/testimonial/gina-g-2/

Surgical removal of tumors in the pituitary gland of the brain remains the gold standard for Cushing’s disease treatment.

Transsphenoidal surgery (TSS) usually leads to good remission rates ranging from 68-95%, depending on the location and type of tumor, the neurosurgeon’s expertise, follow-up period, and the definition of remission.

Today, TSS consists of surgery directed through the nose to get to the bottom of the skull, where the pituitary gland is located. The tumor is reached via the nasal cavity with no need for incisions on the face.

Read more at https://cushieblog.com/2018/07/28/transsphenoidal-surgery-is-safe-and-effective-treatment-for-cushings-disease/

Nicole is from Toronto, Canada  She is 37 years old and was diagnosed with Cushing's disease in May 2017 after suffering through a high risk pregnancy, early delivery and postpartum pain. She had a left adrenalectomy.

Read nore at https://cushingsbios.com/2019/02/10/nicole-s-nicoles-adrenal-bio/

In the media: Jessica and Justin, siblings who both had pituitary tumors. 

Read more at https://cushingsbios.com/2018/12/29/jessica-and-justin-siblings-in-the-media/

Toni Murphy
Harlem Road
West Seneca ,NY 14224

More info at https://cushieblogger.com/2019/01/05/helphttps://cushieblogger.com/2019/01/26/helpful-doctors-new-york/ful-doctors-new-jersey/

My symptoms are almost identical to yours, but I have yet to have any cortisol testing done (I have doctors appointments coming up that I will ask about having the tests done).

Read more at https://cushingsbios.com/2014/04/25/diana-b-diana-brown-undiagnosed-bio/comment-page-1/#comment-25835

Alexis, can you tell me if your workup has revealed any answers? Someone I love is experiencing the same symptoms. With weight gain, rounded face, resting HR high, heat intolerance, nausea, vomiting, fainting..

In the comments area of https://cushingsbios.com/2013/04/30/alexis-alexis-undiagnosed-bio/