The 5-year-old boy’s over-production of adrenal gland hormones led to both symptoms of Cushing’s syndrome and signs that he was starting puberty, the researchers said.

One reason the case was rare is that the average age when Cushing’s develops is 40, doctors say. Another is that epithelial adrenal gland tumors account for only 0.2 percent of all tumors in children, the researchers said.

Read more at https://cushieblog.com/2018/02/17/adrenal-gland-lump-led-to-5-year-old-developing-cushings-starting-puberty/

Talking about Cushing’s from the spouse/caretaker point of view He is also Monica’s producer/ manager.  For the two years during Monica’s diagnosis and surgeries he worked from home as a computer programmer so that he could take care of Monica. Monica and Kevin were married two years ago, just before Monica’s pituitary surgery...

Read more at https://cushieblogger.com/2018/04/17/archived-interview-with-monicas-husband-kevin-about-caretakers/

...My wife is struggling with Cushing’s as well, and it’s difficult to find people with the same experiences here as I’m sure you know....

Read more at https://cushingsbios.com/2015/09/26/ghadeer-gogo-undiagnosed-bio/

A noninvasive 7 Tesla MRI scanner at University of Southern California is the first 7T scanner to be used on a patient with Cushing's disease in the U.S., according to a USC news release.  

When a brain tumor was found to be 'MRI-negative' in a 28-year-old female patient, physicians at the USC's Pituitary Center were unsatisfied with the results. After deciding to use the Neuroimaging and Informatics Institute's (INI) new ultrahigh field 7 Tesla MRI scanner to localize the tumor, the patient was officially diagnosed with Cushing's disease and researchers were finally able to be see the tumor that would've otherwise appeared hidden in a standard MRI.  

Read more at https://www.healthimaging.com/topics/neuroimaging/uscs-7-tesla-mri-scanner-first-identify-cushings-disease-us-patient

A “friend” pushed me and I hit my head on a radiator and broke it and a few months after a tumor grew. I’ve been having symptoms ever since. Could I go after here and get compensation for medical care I need now?

in the comments area of http://cushieblog.com/2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury

Were your itching, flushing and elevated BP episodes (cyclic) or there all of the time?

In the comments area of https://cushieblogger.com/2018/05/30/guest-question-is-itching-common-with-cushings-syndrome/

Pituitary Tumors, Adrenal Tumors, and Other Cushing’s Syndrome Causes

Read more at https://cushieblog.com/2016/10/02/causes-of-cushings-syndrome/

(1822) English psychologist and statistician Francis Galton was born. He was the first to apply statistical methods to research and to collect information through surveys and questionnaires.

Adrenal insufficiency is a condition that develops when most of the adrenal gland is not functioning normally. Primary adrenal insufficiency arises due to the damage of the glands or because of using drugs that halt synthesis of cortisol. On the other hand, secondary adrenal insufficiency stems from processes that inhibit the secretion of the adrenocorticotropic hormone (ACTH) by the hypophysis as a result of a hypothalamic or pituitary pathology. The former is sometimes also referred to as tertiary adrenal insufficiency.

Read more at https://cushieblog.com/2016/11/20/adrenal-insufficiency-primary-and-secondary/

Robin suggested this at the Pittsburgh Cushing's Dinner.

These are the ones I gave out at the dinner and send out with the awareness bracelets. I print them on special tri-fold brochure paper and that works out well.

I do update these after each meeting, when I have new pictures, so if you print them out, check back now and then for the latest copy smile.gif

Newest version has a Columbus, OH picture

Print your own Cushing's brochures at http://www.cushings-help.com/downloads/brochure.pdf

In her bio, Krista added her helpful doctor, Maria Fleseriu

Read more at https://cushieblogger.com/2018/11/19/helpful-doctors-oregon/

In April 2017, the patient arrived at the emergency room with sepsis — a potentially life-threatening complication of an infection — that originated in the gut.

Because ketoconazole had failed to lower cortisol levels, the patient started receiving infused etomidate, an inhibitor of the enzyme 11‐beta‐hydroxylase that prevents cortisol synthesis.

This treatment was stopped one day before the bilateral removal of the adrenal glands as a definitive treatment for the elevated production of cortisol.

Read more at https://cushieblog.com/2018/05/18/etomidate-found-effective-in-severe-cushings-syndrome/

Functional remission did not occur in most patients with Cushing syndrome who were considered to be in biochemical and clinical remission, according to a study published in Endocrine. This was evidenced by their quality of life, which remained impaired in all domains.

Read more at https://cushieblog.com/2018/08/18/cushing-syndrome-results-in-poor-quality-of-life-even-after-remission/

One is from Pittsburgh, PA, i from Udine, Italy snd one from Roanoke, VA

See the MemberMap

#3– DO NOT MAKE IT “PRETTY” OR “NOT SO OBVIOUS”. I can not stress this enough. Ladies I know that you want the cute ones that look like normal bracelets, and have pretty charms, etc on them… THE ENTIRE point of a medical alert bracelet is that someone needs to see it and know that they should look at it. If it looks like a regular bracelet or regular necklace and it isn’t obvious within the first 3 seconds once we get to you and look in the obvious places (neck/wrist). it will NOT get seen. I promise you, we are too busy trying to play the guessing game of why you are not responding, than to take a look at every single piece of regular jewelry and see if it might have a really small inscribing of what is wrong with you. Once again. Make it noticeable. We will see that we need to look at it. Once we do. The guessing game is more than likely OVER. and we can begin to treat you appropriately.

Read more at https://cushieblog.com/2017/07/18/yes-you-need-a-medical-alert-bracelet/

In the past decade, several studies in adults and children have described the risk of pituitary dysfunction after traumatic brain injury (TBI). As a result, an international consensus statement recommended follow-up on the survivors.

More info at https://cushieblog.com/2016/11/21/pituitary-dysfunction-after-traumatic-brain-injury-are-there-definitive-data-in-children/

Listen as Monica (Monicaroni) talks about the challenges she’s faced maintaining her music career while in testing and treatment. Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash, she also had a BLA in December 2006.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/02/interview-with-monica-pituitary-survivor

This is a Myth. More current research has explored multiple etiologies of Cushing’s. It was once thought that heredity had no influence on the development of Cushing’s Syndrome/Disease and our knowledge was once limited in this sense.

Read more at  https://cushieblogger.com/2018/04/18/myths-and-facts-about-cushings-men1-and-men2-are-the-only-genetic-causes-of-cushings/

The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.

I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?

More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/

Add your location and diagnosis to our Cushing's World Map.
Helpful Doctor locations are being added to this map, as well

See the Map at https://drive.google.com/open?id=1NLdGqTJyaJOvxegUnUR_slLRcYyMsVbJ&usp=sharing

Krista is from Eugene, OR   She had pituitary surgery in April, 2015.  She has also dealt with thyroid cancer.

Read more at https://cushingsbios.com/2018/11/19/krista-pituitary-bio/

I’m just in the process of getting diagnosed with Cushing’s Syndrome but I just wanted to let you know that virtually everything you described is also happening to me, symptoms wise...

Read more at https://cushingsbios.com/2016/05/04/susanna-n-susanna-nolt-pituitary-bio/

I dropped by this site because my friend’s daughter has Cushings and I wanted to learn more. Is there any chance that Cushings might be manageable or improvable in a way similar to what Izabella Wentz proposes for Hashimotos?

Can you help?  https://cushingsbios.com/2018/11/17/jayne-in-the-media/

“Medical treatment is a reasonable treatment option for Cushing’s disease patients in case of a contraindication for surgery, a recurrence, or in patients choosing not to have surgery,” Broersen told Endocrine Today. “In case of side effects or no treatment effect, an alternate medical therapy or combination therapy can be considered.”

Read more at https://cushieblog.com/2018/07/19/medical-therapy-reasonable-option-vs-surgery-in-cushings-disease/

More than a century ago, Harvey Cushing introduced the term “pluriglandular syndrome” to describe a disorder characterized by rapid development of central obesity, arterial hypertension, proximal muscle weakness, diabetes mellitus, oligomenorrhea, hirsutism, thin skin, and ecchymoses.

Read more at https://cushieblog.com/2017/04/18/diagnosis-and-differential-diagnosis-of-cushings-syndrome/

Transsphenoidal surgery — a minimally invasive surgery for removing pituitary tumors in Cushing’s disease patients — is also effective in children and adolescents with the condition, leading to remission with a low rate of complications, a study reports.

The research, “Neurosurgical treatment of Cushing disease in pediatric patients: case series and review of literature,” was published in the journal Child’s Nervous System.

Read more at https://cushieblog.com/2019/01/19/transsphenoidal-surgery-leads-to-remission-in-children-with-cushings-disease/

Ferol started noticing irregular symptoms in her late 20’s, but more developed since 2001, and rapidly more chronic as time went by. Finally, at her March 2005 physical, she had enough symptoms listed for her GP to start getting the connection to Cushing’s.

She was immediately referred to Dr. Adam Spitz, endocrinologist, with a battery of tests confirmed the initial diagnosis. Her pituitary surgery was performed 09-30-05. She has lost 30+ pounds after reaching a high of 190 prior to surgery.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/08/interview-with-ferolv-pituitary-survivor

How is your daughter doing? I have an adrenal adenoma and am having a right adrenalectomy soon...

Read more at https://cushingsbios.com/2018/11/14/sahana-sahana-adrenal-bio/

I was told that I have Cushing's disease, which has caused diabetes, high blood pressure, hunger, weight gain and muscle loss. I was never sick before this, and I did not have any of those things. I am told I have a tumor on my right adrenal gland. I have been to numerous doctors, but most have not been too helpful.

Read more at https://cushieblog.com/2016/10/04/cushings-disease-best-treated-by-endocrinologist/

If left untreated, adrenal insufficiency can cause serious illness or death. But by working with their doctors and nurses, patients can learn how to manage this condition.

Learn more at http://www.cushings-info.com/index.php?title=Adrenal_Crisis!

Good general info for anyone, no matter what symptoms or disease you may have.

Read more at http://www.cushings-info.com/index.php?title=Help_Yourself,_Part_3

 (1893) American attorney and psychologist Elizabeth Holloway Marston was born. She is known for being an inspiration for the Wonder Woman comics, and for her contribution to the development of the systolic blood pressure test.

Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you'll want to know.

Find them at http://www.cushings-help.com/definitions.htm

I had surgery last October for Cushing’s syndrome; had adrenal gland tumor (incidentaloma) and gland removed. Last two years have been a nightmare..

In the comments area at https://cushieblogger.com/2018/04/08/have-you-had-treatment-for-cushings/

Recurrence of hypercortisolism in patients after bilateral adrenalectomy for Cushing’s disease is extremely rare.

Read more at https://cushieblog.com/2016/12/21/bilateral-testicular-tumors-resulting-in-recurrent-cushings-syndrome-after-bilateral-adrenalectomy/

Jackie (samsmom) & Jordan: Cushing’s in young people, the fight to diagnose, the amazing gift of a GOOD endocrinologist. Jackie has appeared on Discovery Health discussing her fight for a cure for her younger daughter, as well. Later, the gene responsible for Sam’s illness was found. Her father carried the gene as did her two sisters. Jordan, Jackie’s oldest daughter, has recently had her adrenals removed.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/15/interview-with-jackie-samsmon-jordan

A moment in the scheming mind of Professor Pituitary and his sidekick, Dr. Hypothalamus!! And... their minions, the Hormonal Kitties!

View the video at https://cushieblog.com/2017/02/15/an-amusing-look-at-hormones-and-the-pituitary-gland/

More about Cherry Pie day at http://www.maryo.co/presidents-day/

Fact: Everyone does NOT have the exact same symptoms. Not all Cushing’s patients are exactly the same. This is one mistake that non experts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not... 

Read more at https://cushieblogger.com/2018/04/20/myths-and-facts-about-cushings-all-cushings-patients-have-the-exact-same-symptoms/

A patient with depression developed Cushing’s syndrome (CS) because of a rare ACTH-secreting small cell cancer of the prostate, a case study reports.

Read more at http://cushings.invisionzone.com/topic/54471-rare-prostate-cancer-associated-with-cushing%E2%80%99s-syndrome/

I am 54. I understand what you are going through. I too have this disease. I just want you to know that you are NOT alone.

In the comments area of https://cushingsbios.com/2018/03/03/cyndi-k-what-now-undiagnosed-bio/

Post-traumatic stress disorder (PTSD) following Cushing’s disease is a real issue many of us face. However, we don’t have to let it control our lives — there are ways to cope.

Cushing’s changes us both mentally and physically. We become forgetful. We lose strength. We become someone we don’t recognize in the mirror. We lose hair on our heads and gain it everywhere else. We’re always in pain, and we’re always sick, with no end in sight (or at least it feels that way).

Read more at https://cushieblog.com/2018/10/20/finding-ways-to-deal-with-post-surgery-anxieties/

This trial is testing the safety and effectiveness of a new investigational drug for the treatment of Cushing's Syndrome. Under the supervision of qualified physicians, cortisol levels and symptoms of Cushing’s Syndrome will be closely followed along with any signs of side effects.

Learn more at http://curec.lk/1X0J6kT

 (1941) Canadian medical scientist, and physician Frederick Banting passed away. He shared the 1923 Nobel Prize in Medicine for his co-discovery of insulin.

Unfortunately, problems with the pituitary gland may not always be visible on MRIs or other imaging tests because the pituitary is so small. Endocrinologists who handle hormone therapy frequently are not familiar with brain injuries, and may not make the connection that your brain injury was the cause of the problem.

Read more at http://cushieblog.com/2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury

I see a doctor at Vanderbilt who specializes in Cushings. I am very grateful that I found her but she never talks about the fatigue. I really wish this was discussed more. I’m not even sure if I have the energy to continue to work...

In the comments area of https://cushingsbios.com/2018/04/03/tamara-k-pituitary-bio/

Mutations in USP48 and BRAF genes contribute to the overproduction of adrenocorticotropin (ACTH) hormone by the pituitary gland and consequent development of Cushing’s disease, a study shows, linking these genes to the disease for a first time.

The study, “Identification of recurrent USP48 and BRAF mutations in Cushing’s disease,” published in the journal Nature Communications, also identified a possible treatment for patients with BRAF-related mutations.

...

It is still not clear why some people develop these tumors, but studies have pointed to mutations in the USP8 gene as a possible cause. They are present in 35%–62% of all tumor cases, and influence treatment response and long-term outcomes.

Read more at https://cushieblog.com/2018/11/21/mutations-in-two-genes-usp48-and-braf-linked-to-cushings-disease/

Image-guided (navigation-assisted) endoscopic trans-nasal trans-sphenoidal pituitary surgery is what we are about to view being performed in the country (Sri Lanka) only since October this year. For, the 38-year-old patient lying inert on the operating table has a tumour just above her pituitary gland, between the optic nerves and the carotid arteries, making it a difficult operation-site to access. (The pea-size pituitary gland is dubbed the ‘master gland’ as it produces many hormones for the whole body, while also stimulating other glands to produce other hormones.)

Read more at https://cushieblog.com/2016/12/21/into-the-brain-through-the-nostrils-sri-lanka/

Clinicians should be aware that even extremely low doses of topical ocular steroid therapy can cause iatrogenic Cushing's Syndrome.

Read more at https://cushieblog.com/2017/01/21/topical-ocular-glucocorticoid-leads-to-cushings-syndrome-in-9-year-old/

A clear understanding of the pitfalls in the performance and interpretation of adrenal CT can help prevent incorrect and inappropriate investigations, award-winning researchers from a top London facility have found. It's essential to keep aware of the full range of pseudolesions and mimics, they said.

'Evaluation of adrenal tumor function is limited on imaging, but may be inferred from imaging findings,' noted Dr. Gurinder Nandra and colleagues from the department of radiology at St. George's University Hospitals NHS Foundation Trust in an e-poster presentation that received a cum laude award at RSNA 2018 in Chicago.

Read more at https://cushieblog.com/2019/01/21/how-to-avoid-pitfalls-in-interpretation-of-adrenal-imaging/

I remember my first guest post in 2007, was overjoyed to find I wasn't the only medical anomaly lol!

Congratulations to Cushing's Help for coming of age! ?

Posted at https://cushieblogger.com/testimonial/melanie-c/

Through these results, we suggest that substrate rewiring may contribute to Cushing's Syndrome disease etiology, and introduce a powerful new paradigm for investigating mutation-induced kinase substrate rewiring in human disease.

Read more at https://cushieblog.com/2016/12/15/cushings-syndrome-mutant-pkal205r-exhibits-altered-substrate-specificity/

I'm having to rebuild the Cushing's Member Map from old info and the newer bios that are coming in.  Find the new MemberMap here

Add your information - or your doctor's - at https://cushingsbios.com/2018/10/28/we-have-a-new-bio-form/

What do you think?  Are your allergies worse or are you having new ones after being post-op Cushing's?

Read more at https://cushieblogger.com/2018/10/21/what-do-you-think-2/

Diagnosis is based on a review of the patient's medical history, physical examination and laboratory tests. Often x-ray exams of the adrenal or pituitary glands are useful for locating tumors. These tests help to determine if excess levels of cortisol are present and why.

No single lab test is perfect, and usually, several are needed. The three most common tests used to diagnose Cushing's syndrome are the 24-hour urinary free cortisol test, the measurement of midnight plasma cortisol or late-night salivary cortisol, and the low-dose dexamethasone suppression test (LDDST). Another test, the dexamethasone-corticotropin-releasing hormone (dexamethasone-CRH) test, may be needed to distinguish Cushing's syndrome from other causes of excess cortisol.

Read more at http://www.cushings-info.com/index.php?title=Diagnostic_Testing

In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.

Read more at http://www.cushings-info.com/index.php?title=Adrenal_Insufficiency

Cushing’s disease is the most common form of endogenous Cushing’s syndrome. It is caused by a tumor in the pituitary gland that secretes excessive amounts of a hormone called Adrenocorticotropic hormone, or ACTH. Fortunately, this type of tumor is typically benign. Unlike a cancerous (malignant) tumor, a benign tumor stays in its original location and will not spread. After you are diagnosed with Cushing’s syndrome, it is important that your doctor continues the diagnostic process to determine the cause of hypercortisolism.

Read more at http://www.cushings-info.com/index.php?title=Cushing%27s_Disease_or_Syndrome%3F

This could be me! I need to talk to the person who wrote this. We have so much in common! We need to chat,

Read the original bio at https://cushingsbios.com/2015/06/16/diana-m-dbear12003-adrenal-bio/

Cerce is from Rohnert Park, CA.  It has been 26 years since her first symptom of excruciating unrelenting back, and neck,  jaw, and temple pain.  She has been diagnosed with  Hashimoto's and is testing for Cushing's now.

Read more at https://cushingsbios.com/2018/10/26/cerce-h-undiagnosed-bio/

Fact: In simple terms, Adrenal Insufficiency occurs when the body does not have enough cortisol in it. You see, cortisol is life sustaining and we actually do need cortisol to survive. You have probably seen the commercials about “getting rid of extra belly fat” by lowering your cortisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol....

Read more at  https://cushieblogger.com/2018/04/22/myths-and-facts-about-cushings-each-person-requires-the-same-dose-of-steroid-in-order-to-survive/

I definitely know how you feel. My MRI confirmed a Pituitary Tumor 13x16mm (benign/macroadenoma). Just got officially diagnosed last week...

In the comments area of https://cushingsbios.com/2018/04/02/roxanna-dawn-undiagnosed-bio/

... I have every single symptom of Cushing’s, and I believe it is cyclical and has been happening for about 26 years. It will be what kills me, I fear. Of course, it will be deemed because of obesity and health issues related to it. It is frustrating that doctors just think-it’s so rare, this cannot be what’s wrong. I think it is rarely diagnosed because it us hard to get the tests to give the accurate information. I do not think they will ever diagnose me...

Read more at http://wp.me/p3tb2N-r0

Charlie is not yet diagnosed with Cushing’s but has many symptoms. He writes, in part, “I understand that Cushing’s Disease is a very difficult disease to diagnose. However, it seems as though we have had to guide doctors through this process over the past year. If I sound bitter and frustrated, it is because I am! I have not been able to work over the past year. Tasks that used to take me several hours to complete now take two days. I can no longer walk the dog. I do not sleep well at night..”

Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/10/interview-with-charlie-creativeogre

Steve Owens (sowens) returned on May 29, 7:30. His topic was building up support networks and using available agencies to get back to work (rehab, PT/OT, job coaches, etc)...

Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/29/steve-owens-sowens-returns-to-talk-about-support-networks-and-agencies

(1936) American immunologist and microbiologist John Michael Bishop was born. He shared the 1989 Nobel Prize in Physiology or Medicine for his research on how tumours can form as a result of mutated genes.

Yes absolutely. Post surgery 7 years and I have low tolerance for food and real allergies to things and food.

From https://cushieblogger.com/2018/10/21/what-do-you-think-2/

After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.

Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately.

Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op

Because tumors within the skull cannot be palpated, researchers used Magnetic Resonance Elastography (MRE) to assess pituitary tumor stiffness by measuring waves transmitted through the skull into pituitary macroadenomas (PMAs). MRE reliably identified tumors that were soft enough for removal with a minimally-invasive suction technique versus harder tumors requiring more invasive surgery.

Read more at https://cushieblog.com/2017/01/28/imaging-technique-measures-tumor-stiffness-to-aid-surgical-planning/

Kate (Fairley), July 17, 2008. Kate had symptoms since 1991. She had two pituitary surgeries and another recurrence. She is not yet cured and her current diagnoses are Idiopathic Intracranial Hypertension, panhypopituitarism and a CSF leak. She has appeared on National Geographic TV in the Science of Obesity.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/17/interview-with-kate-fairley

Sadly, Kate was only 46 when she died on June 23, 2014.  Her bio and video can be found here: https://cushingsbios.com/2015/06/23/1623/

I was diagnosed with ACTH independent cyclical cushings. It took 5 years to get a diagnosis...

In the comments area of https://cushieblogger.com/2018/04/16/myths-and-facts-about-cushings-ufcs-are-the-gold-standard-for-cushings-testing/

Louise from Washington   She has ACTH independent bilateral adrenal hyperplasia.

Read her bio at https://cushingsbios.com/2018/11/23/louise-adrenal-bio/

Patients with adrenal insufficiency may accrue substantial health care costs and have more hospital stays and outpatient visits compared with healthy controls, according to findings published in the Journal of the Endocrine Society.

Read more at https://cushieblog.com/2017/04/23/health-care-expenditure-burden-high-in-adrenal-insufficiency/

Is it possible to have cushing disease without high blood pressure? they are experiencing a lot of the other symptoms kidney stones, headache, fatigue, joint pain, stretch marks on back, abdomen, arms, breasts, hair loss, obesity in stomach area, potbelly, thin legs, memory issues, thinning of skin, irregular periods, oily skin, acne, puffy face etc.

Read more at https://cushieblogger.com/2018/03/31/can-you-help-with-a-guest-question/

The Guest Forum has returned.  At the moment, new guest questions are not moderated.

Check it out at http://cushings.invisionzone.com/index.php?/forum/316-guest-forum/

When a brain tumor was found to be 'MRI-negative' in a 28-year-old female patient, physicians at the USC's Pituitary Center were unsatisfied with the results. After deciding to use the Neuroimaging and Informatics Institute's (INI) new ultrahigh field 7 Tesla MRI scanner to localize the tumor, the patient was officially diagnosed with Cushing's disease and researchers were finally able be see the tumor that would've otherwise appeared hidden in a standard MRI.  

Read more at https://cushieblog.com/2018/03/24/uscs-7-tesla-mri-scanner-first-to-identify-cushings-disease-in-us-patient/

Happy B-day MaryO & the message boards! Mary, I'm convinced you won't know till you get to heaven, how many lives you've help save & how much comfort you've brought to some of the sickest people on earth. Can't thank you enough!

Read more at https://cushieblogger.com/testimonial/gina-g-2/

Surgical removal of tumors in the pituitary gland of the brain remains the gold standard for Cushing’s disease treatment.

Transsphenoidal surgery (TSS) usually leads to good remission rates ranging from 68-95%, depending on the location and type of tumor, the neurosurgeon’s expertise, follow-up period, and the definition of remission.

Today, TSS consists of surgery directed through the nose to get to the bottom of the skull, where the pituitary gland is located. The tumor is reached via the nasal cavity with no need for incisions on the face.

Read more at https://cushieblog.com/2018/07/28/transsphenoidal-surgery-is-safe-and-effective-treatment-for-cushings-disease/

Not only does the pituitary make its own hormones, but it also triggers hormone production in other glands. The pituitary is aided in its job by the hypothalamus. This part of the brain is situated above the pituitary, and sends messages to the gland on when to release or stimulate production of necessary hormones.

Read more at https://cushieblog.com/2016/12/31/the-pituitary-gland-small-but-mighty/

Heather, pituitary surgery on January 18, 2006 after years of medical problems, June 5, 7:30PM 

Listen at http://www.blogtalkradio.com/cushingshelp/2008/06/05/interview-with-heather-s-pituitary-cushings-survivor

In the media: Jessica and Justin, siblings who both had pituitary tumors. 

Read more at https://cushingsbios.com/2018/12/29/jessica-and-justin-siblings-in-the-media/

Toni Murphy
Harlem Road
West Seneca ,NY 14224

More info at https://cushieblogger.com/2019/01/05/helphttps://cushieblogger.com/2019/01/26/helpful-doctors-new-york/ful-doctors-new-jersey/

Alexis, can you tell me if your workup has revealed any answers? Someone I love is experiencing the same symptoms. With weight gain, rounded face, resting HR high, heat intolerance, nausea, vomiting, fainting..

In the comments area of https://cushingsbios.com/2013/04/30/alexis-alexis-undiagnosed-bio/