Currently, endoscopic transsphenoidal surgery (ETS) and microscopic transsphenoidal surgery (MTS) are commonly applied treatments for patients with pituitary adenomas. This meta-analysis was conducted to evaluate the efficacy and safety of ETS and MTS for these patients.

Read more at https://cushings.invisionzone.com/topic/56622-endoscopic-vs-microscopic-transsphenoidal-surgery-for-the-treatment-of-pituitary-adenoma/

Kim is from Wisconsin.  She was recently diagnosed with Cushing’s after about three years of testing.  This is in addition to a diagnosis of Lipedema a little over a year ago.

Read more at https://cushingsbios.com/2022/06/27/kim-jones-kimvj-pituitary-bio/

Patients with neuroendocrine tumors before ectopic Cushing syndrome development were more likely metastatic and had worse survival

Read more at https://cushings.invisionzone.com/topic/56894-management-of-adrenocorticotropic-hormone-secreting-neuroendocrine-tumors-and-the-role-of-bilateral-adrenalectomy-in-ectopic-cushing-syndrome/

Data presented at AACE 2022 detail levoketoconazole-specific effects observed among patients with endogenous Cushing's syndrome from the phase 3 LOGICS trial.

Read more at https://cushings.invisionzone.com/topic/56919-withdrawal-study-details-effects-of-levoketoconazole-in-cushings-syndrome/

Ectopic Cushing’s syndrome due to metastatic neuroendocrine small-cell carcinoma is a rare condition with a poor prognosis. The options for treatment are few and not necessarily curative. There needs to be increased awareness of this serious and rare complication. Managing the condition can be a challenge and requires a multidisciplinary team approach to improve outcomes.

Read more at https://cushings.invisionzone.com/topic/57577-recurrent-neuroendocrine-tumor-of-the-cervix-presenting-with-ectopic-cushing%E2%80%99s-syndrome/

Jason is from England.  Pituitary tumour found in 2020(posterior lobe),now test after test and 2nd MRI still shows microadenoma. He also had two traumatic brain injuries.

Read more at https://cushingsbios.com/2022/10/27/jason-t-pituitary-bio/

Reports on drug companies that make medications for Cushing's: Novartis, Orphagen Pharmaceuticals, Inc., Corcept Therapeutics

Various factors are responsible for the market’s growth trajectory, which are studied at length in the report. In addition, the report lists down the restraints that are posing threat to the global Cushing’s Syndrome Diagnostic and Treatment market.

Read more at https://cushings.invisionzone.com/topic/56888-cushing%E2%80%99s-syndrome-diagnostic-and-treatment-market-see-huge-growth-for-new-normal/

Only 4.8% of patients with adrenal insufficiency who use medical identification jewelry clearly indicate on their emblem the need for urgent parenteral hydrocortisone in the event of an adrenal crisis, potentially jeopardizing the ability to receive proper assistance in an emergency, according to a cross-sectional analysis published in Clinical Endocrinology.

“Although the use of medical identification jewelry is recommended for patients with adrenal insufficiency to assist in the prevention and treatment of an adrenal crisis, the results of this study indicate that this advice is taken up by only a modest proportion of patients,” R. Louise Rushworth, MBBS, PhD, FAFPHM, an adjunct professor and medical epidemiologist at the School of Medicine, Sydney, and the University of Notre Dame Australia, told Endocrine Today. “Patients with secondary adrenal insufficiency have a lower uptake than those with primary adrenal insufficiency despite their risk of an adrenal crisis approaching that people with primary adrenal insufficiency.”

Read more at https://cushieblog.com/2019/04/28/medical-id-jewelry-often-lacks-clear-instructions-for-adrenal-insufficiency/

...my life has changed significantly since my last interview, and I could talk about losing my job and applying for Social Security at such a young age. And the issues about self-esteem tied to a career, and risk of depression and isolation...

Listen at https://cushieblogger.com/2019/04/27/archived-second-interview-alicia/

Blood tests and an MRI finally confirmed the doctor’s suspicion: Yawn had a tumor in her pituitary gland — a pea-size organ at the base of the brain — that was causing the gland to release too much adrenocorticotropic hormone. That, in turn, flooded her body with cortisol, a steroid hormone that’s normally released in response to stress or danger. The resulting condition is called Cushing disease.

Read more at https://cushings.invisionzone.com/topic/56889-media-attention-cushings-on-today/

A 50-year-old woman with adrenal Cushing's syndrome and chronic hepatitis C developed an acute exacerbation of chronic hepatitis C before adrenectomy. After administration of glecaprevir/pibrentasvir was started, her transaminase levels normalized promptly and a rapid virological response also was achieved. Laparoscopic left adrenectomy was then performed safely.

Read more at https://cushings.invisionzone.com/topic/56625-a-case-of-acute-exacerbation-of-chronic-hepatitis-c-during-the-course-of-adrenal-cushings-syndrome/

Patients with neuroendocrine tumors before ectopic Cushing syndrome development were more likely metastatic and had worse survival

Read more at https://cushings.invisionzone.com/topic/56894-management-of-adrenocorticotropic-hormone-secreting-neuroendocrine-tumors-and-the-role-of-bilateral-adrenalectomy-in-ectopic-cushing-syndrome/

Ectopic Cushing’s syndrome due to metastatic neuroendocrine small-cell carcinoma is a rare condition with a poor prognosis. The options for treatment are few and not necessarily curative. There needs to be increased awareness of this serious and rare complication. Managing the condition can be a challenge and requires a multidisciplinary team approach to improve outcomes.

Read more at https://cushings.invisionzone.com/topic/57577-recurrent-neuroendocrine-tumor-of-the-cervix-presenting-with-ectopic-cushing%E2%80%99s-syndrome/

Cushing’s disease is a progressive pituitary disorder in which there is an excess of cortisol in the body. While the disease can be treated surgically, this option is not possible for all patients. This is one of the approved medications that assist in controlling cortisol levels in people with Cushing’s disease.

Recorlev was approved by the FDA in December 2021 to treat those Cushing’s patients for whom surgery is not a choice or has failed to lower cortisol levels.

Read more at https://cushings.invisionzone.com/topic/56549-meds-recorlev/

…particular, Helton has made contact with Dr. Karen Thames from Chicago. She has been diagnosed with Cushing’s and is working on a documentary called…

Read more at http://cushingsbios.com/2015/04/29/surviving-cushings-area-woman-hit-by-rare-disease/

Clinical trial analyses focus on the human body’s homeostatic response to potent HSD-1 inhibition by SPI-62.

Results highlight that urinary free cortisol is distinct from intracellular cortisol that causes symptoms in patients with Cushing’s syndrome or autonomous cortisol secretion.

Read more at https://cushings.invisionzone.com/topic/56920-sparrow-pharmaceuticals-presents-new-clinical-trial-data-analyses-on-hsd-1-inhibitor-spi-62-at-the-24th-european-congress-of-endocrinology/

The Add Your Bio form has been updated so that it no longer requires Flash. Your information will help others.

I would like to add that if anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio to the website this month?

More info at https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/

Hermina had Cushing's Disease. She passed away November 29, 2002.

https://cushingsbios.com/2021/11/29/in-memory-hermina-dala-november-29-2002/ 

Millie is the first Cushing’s patient that I know of to have died from complications from Swine Flu.  She was only 36.

Millie developed a confirmed case of the H1N1 virus. She spent 29 days in the ICU of Millard Suburban Hospital before dying of complications of the flu, compounded by Behcet’s Disease and Cushings Disease.

Read more at https://cushingsbios.com/2021/11/29/in-memory-millie-niss-november-29-2009/

Here, we report the case of Mr D.M., 53-years old, diagnosed with adrenocorticotrophic hormone (ACTH)-independent CS 6 months earlier. At diagnosis, he presented with resistant hypertension, hypokalemia, diabetes mellitus, easy bruising, purple abdominal striae and major oedema of the lower limbs.

Read more at https://cushings.invisionzone.com/topic/56554-synergistic-cortisol-suppression-by-ketoconazole%E2%80%93osilodrostat-combination-therapy/

I was married 38 years when I became sick in 2011, but the family doctor and my husband wouldn’t believe me. They thought I was lazy, fat and crazy when they shipped me off to a mental ward in a hospital. I knew I was physically sick with Cushing’s Disease, but I couldn’t convince the psychiatrist. I left my husband, got a new doctor and was diagnosed with Cushing’s Disease in 2012. I had successful surgery in April 2013 to remove the pituitary tumor. I had Adrenal Insufficiency and was put on 5mg of prednisone as my body would not produce its own cortisol.

Janice's bio includes a video.

Read more at https://cushingsbios.com/2021/04/27/janice-b-pituitary-bio/

Patients with neuroendocrine tumors before ectopic Cushing syndrome development were more likely metastatic and had worse survival

Read more at https://cushings.invisionzone.com/topic/56894-management-of-adrenocorticotropic-hormone-secreting-neuroendocrine-tumors-and-the-role-of-bilateral-adrenalectomy-in-ectopic-cushing-syndrome/

Ectopic Cushing’s syndrome due to metastatic neuroendocrine small-cell carcinoma is a rare condition with a poor prognosis. The options for treatment are few and not necessarily curative. There needs to be increased awareness of this serious and rare complication. Managing the condition can be a challenge and requires a multidisciplinary team approach to improve outcomes.

Read more at https://cushings.invisionzone.com/topic/57577-recurrent-neuroendocrine-tumor-of-the-cervix-presenting-with-ectopic-cushing%E2%80%99s-syndrome/

Katie’s short bio: Symptoms started in 2002 at age 22, or before. Jan. 2008 – 2 mm. area of differential enhancement on right pituitary and 11 mm. pineal cyst identified by MRI Jan. 2008 – DX – hypothalamic amenorrhea Mar. 2008 – DX – pituitary adenoma, hypogonadism – female.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/24/interview-with-katie-kvb927

Cushing’s syndrome (CS) secondary to ectopic adrenocorticotrophic hormone (ACTH)-producing prostate cancer is rare with less than 50 cases reported. The diagnosis can be challenging due to atypical and variable clinical presentations of this uncommon source of ectopic ACTH secretion.

Read more at https://cushings.invisionzone.com/topic/56892-challenging-case-of-ectopic-acth-secretion-from-prostate-adenocarcinoma/

To treat Cushing's syndrome (CS) as soon as feasible, a rapid diagnosis is required. A simple measure, the Cushing score, was created and ...

Read more at https://cushings.invisionzone.com/topic/56427-new-test-may-help-in-early-diagnosis-of-cushings-syndrome/

When I suggested cushings to my GP early this year, after stumbling upon info online, and linking the purple stretch marks, high blood pressure, weight gain, brain fog etc... I was told by the GP that cushings was EXTREMELY rare, and most often 'only diagnosed in children'. I fell apart and I felt defeated after genuinely thinking there might have been light at the end of the tunnel. But I insisted that I have some kind of test for peace of mind...

Read more at https://cushings.invisionzone.com/topic/56921-how-do-we-cope-with-uncertainty-during-testing/

Since I just had Mohs surgery for squamous cell carcinoma, I immediately went to amazon to search for nicotinamide.

Read more at https://maryomedical.com/2021/05/30/testing-vitamin-b3/

Patients with neuroendocrine tumors before ectopic Cushing syndrome development were more likely metastatic and had worse survival

Read more at https://cushings.invisionzone.com/topic/56894-management-of-adrenocorticotropic-hormone-secreting-neuroendocrine-tumors-and-the-role-of-bilateral-adrenalectomy-in-ectopic-cushing-syndrome/

hello,i found your story while researching gip induced cushings. your story was very touching to me. i am sorry you had to endure all this. it is so completely frusterating when the doctors dont understand .i was recently diagnosed with subclinical cushings but now have more tests confirming high cortisol. i have bilateral tumors causing mine. although recently my symptoms have increased. i am barely able to eat anything without stomach pain and upset. my list of foods that i can eat is becoming increasing small. your story and symptoms of the pain and stomach swelling is the same. sadly also my 13 year old daughter is starting to develop food insensitivities and food intolerances...

Read more at https://cushingsbios.com/2013/06/23/magdalena-food-dependent-cushings-bio/

Ectopic Cushing’s syndrome due to metastatic neuroendocrine small-cell carcinoma is a rare condition with a poor prognosis. The options for treatment are few and not necessarily curative. There needs to be increased awareness of this serious and rare complication. Managing the condition can be a challenge and requires a multidisciplinary team approach to improve outcomes.

Read more at https://cushings.invisionzone.com/topic/57577-recurrent-neuroendocrine-tumor-of-the-cervix-presenting-with-ectopic-cushing%E2%80%99s-syndrome/

There are several home cortisol tests available to purchase over the counter or online. These allow a person to take a sample of blood, urine, or saliva before sending it off for analysis.

After taking a home cortisol test, people can usually receive their results within 2–5 days online or via a telephone call with a healthcare professional.

However, there are currently no studies investigating the reliability of these home cortisol tests. Therefore, people should follow up on their test results with a healthcare professional.

Read more at https://cushings.invisionzone.com/topic/55639-home-cortisol-tests-3-of-the-best/

Recordati Rare Diseases announce today the publication of positive results from the Phase III LINC 4 study of Isturisa in The Journal of Clinical Endocrinology & Metabolism. These data reinforce Isturisa as an effective and well-tolerated oral therapy for patients with Cushing’s disease. Isturisa is indicated in the EU for the treatment of adult patients with endogenous Cushing’s syndrome, a rare and debilitating condition of hypercortisolism

Read more at https://cushings.invisionzone.com/topic/56726-recordati-rare-diseases-announce-publication-in-the-journal-of-clinical-endocrinology-metabolism-of-the-phase-iii-linc-4-study-confirming-the-efficacy-and-safety-of-isturisa%C2%AE-osilodrostat-in-patients-with-cushing%E2%80%99s-disease/

Assessment of late-night salivary cortisol (LNSC) levels is a poor diagnostic tool for detecting Cushing’s disease in obese patients, a new study from Germany shows.

The test demonstrated a particularly poor sensitivity in obese people, meaning it will often suggest a patient has Cushing’s disease when that is not the case — called a false-positive...

Read more at https://cushieblog.com/2018/03/30/late-night-salivary-cortisol-a-poor-approach-for-detecting-cushings-in-obese-patients/

Help Rare Patient Voice spread the word to other patients and caregivers about RPV by submitting a short video on your experience with us. Check out the growing group of patients and caregivers who have recorded stories: https://rarepatientvoice.com#sharevoice.

Read more at https://cushings.invisionzone.com/topic/56677-record-a-video-receive-a-rarity-t-shirt/

Macrovascular alterations are prominent in Cushing’s syndrome (CS). Microvascular abnormalities are yet to be established. This cross-sectional observational study aimed to evaluate microvascular changes in nailfold capillaries and their association with disease status and carotid intima-media thickness (CIMT) as a marker of atherosclerosis.

Read more at https://cushings.invisionzone.com/topic/56562-capillary-microarchitectural-changes-in-cushings-syndrome/

Part 1. Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing’s. They also discussed popular doctor blogs and other topics of interest to Cushing’s Patients.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/08/21/tentative-interview-with-joselle

Part 2.  Robin and MaryO discuss the role of blogs in helping to spread the word about Cushing’s. They also discuss popular doctor blogs and other topics of interest to Cushing’s Patients, friends and family.

Listen at http://www.blogtalkradio.com/cushingshelp/2008/09/25/robin-staticnrg-and-mary-oconnor-maryo-discuss-spreading-the-word-about-cushings-part-2

“In general, cortisol levels tend to peak in the late morning and gradually decline throughout the day,” he explains. “When a stressful event occurs, the increased cortisol will work alongside our ‘fight or flight’ mechanisms to either upregulate or downregulate bodily functions. [Affected systems include] the central nervous system, cardiovascular system, gastrointestinal system, or immune system.”

Read more at https://cushings.invisionzone.com/topic/57552-basics-what-causes-abnormal-cortisol-levels/

'We invite you to join us for our opening 12 Days of Cortisol Christmas event, “Overcoming Fatophobia” with Dr. Karen Thames .

Read more at https://cushings.invisionzone.com/topic/57579-12-days-of-cortisol-christmas-event/

Myth: “Cushing’s is RARE”, “No one has Cushing’s!”, “It is literally impossible for you to have Cushing’s Disease!”

Read more at https://cushieblogger.com/2021/04/04/cushings-myths-and-facts-cushings-is-rare-no-one-has-cushings-3/

Patients with neuroendocrine tumors before ectopic Cushing syndrome development were more likely metastatic and had worse survival

Read more at https://cushings.invisionzone.com/topic/56894-management-of-adrenocorticotropic-hormone-secreting-neuroendocrine-tumors-and-the-role-of-bilateral-adrenalectomy-in-ectopic-cushing-syndrome/

Ectopic Cushing’s syndrome due to metastatic neuroendocrine small-cell carcinoma is a rare condition with a poor prognosis. The options for treatment are few and not necessarily curative. There needs to be increased awareness of this serious and rare complication. Managing the condition can be a challenge and requires a multidisciplinary team approach to improve outcomes.

Read more at https://cushings.invisionzone.com/topic/57577-recurrent-neuroendocrine-tumor-of-the-cervix-presenting-with-ectopic-cushing%E2%80%99s-syndrome/

It was in 2014 when the actress left her fans shocked when she revealed that she was diagnosed with Addison's disease. Talking about her condition, Sushmita said that the years she battled Addison's disease 'were pretty traumatising'. After fighting for 4 long years with the chronic condition, the actress healed and emerged stronger by exercising daily.

Read more at https://cushingsbios.com/2021/12/01/sushmita-sens-battle-with-addisons-disease/

This is a randomized, placebo-controlled, crossover study of SPI-62 in subjects with ACTH-dependent Cushing's syndrome. Subjects will receive each of the following 2 treatments for 12 weeks: SPI-62 and matching placebo

Read more at https://cushings.invisionzone.com/topic/57566-clinical-trial-spi-62-as-a-treatment-for-adrenocorticotropic-hormone-dependent-cushings-syndrome-rescue/

Has your doctor ever tried to dissuade you from using an alternative treatment?

Read more at https://cushings.invisionzone.com/topic/57567-what-do-you-think-alternative-treatments/

Patients with Cushing’s disease (CD) experienced transient central adrenal insufficiency (CAI) after successful surgery. However, the reported recovery time of hypothalamic-pituitary-adrenal (HPA) axis varied and the risk factors which could affect recovery time of HPA axis had not been extensively studied. This study aimed to analyze the duration of CAI and explore the risk factors affecting HPA axis recovery in post-operative CD patients with biochemical remission.

Read more at https://cushings.invisionzone.com/topic/57581-preop-tt3-predicts-hpa-axis-recovery-after-cushing-surgery/

The hypothalamic-pituitary-adrenal axis stimulation during pregnancy complicates the investigation of Cushing's syndrome. Our objective is to present a pregnant patient with Cushing syndrome caused by pituitary tumor in which the desmopressin stimulation test helped in the diagnosis and led to appropriate management.

Read more at https://cushings.invisionzone.com/topic/56326-desmopressin-stimulation-test-in-a-pregnant-patient-with-cushing%E2%80%99s-disease/

Patients with neuroendocrine tumors before ectopic Cushing syndrome development were more likely metastatic and had worse survival

Read more at https://cushings.invisionzone.com/topic/56894-management-of-adrenocorticotropic-hormone-secreting-neuroendocrine-tumors-and-the-role-of-bilateral-adrenalectomy-in-ectopic-cushing-syndrome/

Ectopic Cushing’s syndrome due to metastatic neuroendocrine small-cell carcinoma is a rare condition with a poor prognosis. The options for treatment are few and not necessarily curative. There needs to be increased awareness of this serious and rare complication. Managing the condition can be a challenge and requires a multidisciplinary team approach to improve outcomes.

Read more at https://cushings.invisionzone.com/topic/57577-recurrent-neuroendocrine-tumor-of-the-cervix-presenting-with-ectopic-cushing%E2%80%99s-syndrome/

...Being constantly diagnosed as “healthy” caused me to be told, when I was finally diagnosed correctly, that I had maybe five years to live. Misdiagnosis can be a killer.… It is now my personal mission and obligation to help those suffering from any chronic illness that steals your joy, and bring awareness to Endocrine Disorders. From my journey through Cushing’s to Addison’s to recovery—from triathlete to barely being able to dress myself and finally to recovering into a stronger person I never knew I was.

Read more at https://amzn.to/2pWMhOh

In Cushing’s syndrome (CS), chronic glucocorticoid excess (GC) and disrupted circadian rhythm lead to insulin resistance (IR), diabetes mellitus, dyslipidaemia and cardiovascular comorbidities. As undifferentiated, self-renewing progenitors of adipocytes, mesenchymal stem cells (MSCs) may display the detrimental effects of excess GC, thus revealing a promising model to study the molecular mechanisms underlying the metabolic complications of CS.

Read more at https://cushings.invisionzone.com/topic/56741-a-promising-in-vitro-model-to-study-cushing%E2%80%99s-syndrome/

After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However, you should be aware of these possible problems, just in case. The following general guidelines are provided to promote your health and safety.

Headache, facial, and sinus pain are not uncommon following pituitary surgery. As you may have noted, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort, please contact your neurosurgeon immediately.

Read more at http://www.cushings-info.com/index.php?title=Pituitary_Post-Op

In 2015, Charly came home for a visit, and went to see her GP about her lack of periods and a blind spot in her peripheral vision. An MRI scan showed a mass on her brain. ‘They said it had eroded the bone in my nose and was pressing on the optic nerve, and it was lucky we had caught it,’ she says. ‘The next step would have been discovering it because I’d gone blind.’

Read more at https://cushings.invisionzone.com/topic/56330-actress-charly-clive-pituitary-adenoma/

Patients with neuroendocrine tumors before ectopic Cushing syndrome development were more likely metastatic and had worse survival

Read more at https://cushings.invisionzone.com/topic/56894-management-of-adrenocorticotropic-hormone-secreting-neuroendocrine-tumors-and-the-role-of-bilateral-adrenalectomy-in-ectopic-cushing-syndrome/

Dr. Karen Thames shared these on her Facebook Page, Empowering People with Invisible Chronic Illness – The EPIC Foundation

She has graciously given me permission to share them here and in the CushieWiki and on the Cushing’s Help message boards.

Read more at https://cushieblogger.com/2022/04/03/cushings-myths-and-facts-4/

Ectopic Cushing’s syndrome due to metastatic neuroendocrine small-cell carcinoma is a rare condition with a poor prognosis. The options for treatment are few and not necessarily curative. There needs to be increased awareness of this serious and rare complication. Managing the condition can be a challenge and requires a multidisciplinary team approach to improve outcomes.

Read more at https://cushings.invisionzone.com/topic/57577-recurrent-neuroendocrine-tumor-of-the-cervix-presenting-with-ectopic-cushing%E2%80%99s-syndrome/

Cortisol is a hormone which produced by the adrenal gland (cortex) to control blood sugar. The production of cortisol is triggered by the pituitary hormone ACTH. Cortisol is a glucocorticoid which stimulates an increase in blood glucose. Cortisol will also stimulate the release of amino acids from muscle tissue and fatty acids from adipose tissue. The amino acids are then converted in the liver to glucose (for use by the brain). The fatty acids can be used by skeletal muscles for energy (rather than glucose) thereby freeing up glucose for selective utilization by the brain. Cortisol levels are often measured to evaluate the function of the pituitary or adrenal glands. Some of the cortisol is metabolized by the liver to produce 17 hydroxycorticosteroids, which is then excreted in the urine.

Read more at https://cushings.invisionzone.com/topic/56255-what-is-cortisol/

Bilateral adrenalectomy (BA) still plays an important role in the management of Cushing's disease (CD). Nelson’s syndrome (NS) is a severe complication of BA, but conflicting data on its prevalence and predicting factors have been reported. The aim of this study was to determine the prevalence of NS, and identify factors associated with its development.

Read more at https://cushings.invisionzone.com/topic/55708-prevalence-of-nelson%E2%80%99s-syndrome-after-bilateral-adrenalectomy-in-patients-with-cushing%E2%80%99s-disease/

Acute adrenal crisis is a life-threatening state caused by insufficient levels of cortisol, which is a hormone produced and released by the adrenal gland.

Read more at https://cushings.invisionzone.com/topic/56238-call-911-adrenal-crisis-addisonsadrenal-insufficiency/

Through the newly available dial-up internet, I joined forces with a small group of wonderful Cushing’s advocates. Cathy Gifford and Mary O’Connor, were my first Cushing’s friends, and are still dear friends twenty one years later. Together we got things moving. Mary, has built the largest Cushing’s support boards, and her admirable dedication continues to help and support patients from all over the world, Cushing’s Help and Support (cushings-help.com).

Read more at https://cushieblogger.com/2022/04/03/kind-words-for-cushings-awareness-month/

The pituitary gland produces hormones. A tumor in this gland can cause it to produce too much of the hormone cortisol. Too much cortisol in the body causes Cushing disease. This disease causes many problems. Some of these problems might persist after the disease is cured.

Read more at https://cushings.invisionzone.com/topic/56742-long-term-follow-up-of-survivors-of-pediatric-cushing-disease/

Sharmyn McGraw searched for answers for seven years for whatever it was that was killing her; finally she diagnosed herself via the Internet with Cushing’s disease, caused by a pituitary brain tumor. 

See the video at https://cushieblogger.com/2019/04/03/video-cushings-disease-pituitary-gland/

One of my least favorite things about my life with chronic illness is having imaging appointments.  Whether it's my yearly brain MRI, or a chest X-ray, the whole process is uncomfortable, and sometimes even painful...

Read more at https://cushieblogger.com/2019/04/03/from-a-past-blogging-challenge-cushings-awareness-challenge-danielle-day-3/